What if BFS Affects My Career?

sza

Member
At this point, I am not frightened by the BFS, and I am not worried that it is something more severe or serious. Even without an official diagnosis, I think it is pretty clear that BFS is what I have.

However, I am concerned now that the chronic twitching (combined with chemical and mold sensitivities) may impair my ability to work. I am currently self-employed as a business consultant, but my endurance has been significantly compromised by the non-stop twitching -- and it is getting harder for me to travel now with my mold and chemical sensitivities. In fact, my last consulting engagement in February involved a serious mold/diesel exposure which was the occasion for triggering my most recent BFS onset.

As a result, I don't know how "employable" I will be if I cannot continue to work as a consultant.

In light of this, I am curious to know about your own employment experience:

(1) Are you currently employed? If so, what type of work are you doing?

(2) Are you currently self-employed? If so, what type of work are you doing?

(3) Has your experience with BFS interfered with your ability to work, or has it required you to change the type of work you are doing?

(4) Have you had to quit working completely and go on disability because of your BFS?
 
I work full time as a public preschool teacher.
I have 26 kids to keep up with and teach.
I actually feel my best at school, I don't think about is as much.
Amy
 
Congratulations! I'm very impressed. Thanks so much for sharing your feedback, Amy. Your stamina must be amazing....
 
I am an RN, paramedic. It really hasn't affected my job. I guess when I am work, I don't have time to think about it. But, sometimes it does make the days long worrying about the twitches and what the next day will bring.
 
I am a RN,CDE (ceritified diabetes educator) and work with Veterans in a very large medical center.... Very busy..... I notice the twitches when I'm just sitting and charting but otherwise it hasn't effected my work.....
 
I work very part time. Only one day a month and that shift is for only 4 hours. I wanted to quite all together but my company begged me to stay on even for a little bit. My BFS started about 6 months before going part time. I work in a clinical laboratory. Drawing blood, processing pap smears and sliding biopsy's. Sometimes I think that maybe I have breathed in to much formalin. Since staying home nothing has really changed in my twitching. I must say I enjoy staying at home with my two small sons much more than I enjoy working. Being a stay at home mom is truely a gift and I am loving every minute of it!
 
Great! Thanks so much for sharing all your helpful replies....And Jens, I couldn't agree with you more about being a mom at home. I absolutely loved it, too!

Also, FWIW, I'm feeling far less concerned about the whole employment issue now than when I originally posted this question. As things have developed over the last several days, I realized (even more) how much of a difference various types of magnesium can make in how I feel -- and how severe the twitching is.

I knew this might be a possibility, but now that I've tested it, it's pretty clear: I get awfully good twitch control if I have enough of the right types magnesium -- and this has been very encouraging.

I'm not completely "out of the woods" yet, but I am seeing real progress! :)
 

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