What Happened on Thursday? LD Exam

Highlights Only
S

SlavinBreeze

Well-known member
Somebody can dislike following things but this really happened.
Sorry for all grammar errors.
On Thursday I went to see one of the best European Lyme specialist. He is working in Slovenia, country nearby Croatia.
I told him my story. After examing all my lab tests, exams and other medical documentation he said that I DON'T HAVE LD despite at least 3 tick's bites during 2002.
He said that standard European protocol includes ELISA and if this test becomes positive then Western Blot follows. ELISA should be done 2 months after tick's bite. If one takes antibiotics it lasts only 1-2 months. Very rarely 6 months or more!
He thinks that many LD specialist are looking for money and for this reason they are treating patients too long and with antibiotics that are not really necessary.
He said that LD patients with neurological symptoms have paresis on face, fasciculations very rarely. Polyneuropathy can be seen on EMNG.
There is no connection between Chron's Desease and LD. Exists only in theory.
No connection between my tinnitus and LD also.
PCR DNA of borrelia burgdorferi is test which is very complicated for interpretation. In his opinion no one in Europe don't do that.
Conversation with him lasted more than one hour.
Conclusion: Etiology of my twitching is still unknown.
I have not NMD/ALS. I think so; I hope so.
Questions about my LD is ad acta until now!
Slavin
 
Slavin -

I'm glad to hear that the LD specialist said that you don't have LD. Now the question is: "What do you have?" All your symptoms suggest BFS, CFS, peripheral nerve hyperexcitabilty. Now you have to find a treatment that will help you cope with your symptoms. One suggestion is to look on the Symptom Management forum to see what others have found helpful. Finding the right approach is a personal thing. Some people avoid prescription drugs and try diet, exercise, stress management, etc. Others embrace prescription therapy. I am in between. I only take my prescription "as needed" except for my thyroid replacement therapy which I will be taking everyday for the rest of my life.

Good Luck!
 
I need you to understand this ELISA TESTS ARE ALWAYS NEGATIVE,DONT GO BY THAT TEST< YOUR DOCTOR IS 100 PERCENT WRONG!! HE IS NOT AN EXPERT, WE HAVE THE SAME PROBLEM HERE IN THE STATES,YOU WILL NEVER SHOW ON ANY TEST AS THIS IS THE TRUTH,THE ONLY TEST FOR YOU IS IGENEX,PLEASE START POSTING AT LYMEAID AS WE CAN HELP YOU,YOU ARE IN THE WRONG CHATROOM,PLEASE EMAIL ME AND LET ME KNOW IF YOU NEED HELP FINDING LYMEAID,AS FOR CERTAIN MORONS THAT ARE ON THIS CHATROOM,DONT LISTEN TO THEM AS THEY FEEL MISERY LOVES COMPANY...FOLLOW YOUR INSTINCTS......
eric
 
Doctor asked me if I have headache. Headache is one of the sign of tick's born desease, acording to him.
I never ever have any kind of headache which is strange due to my myopia and convergent strabismus.
Slavin
 
Look Eric,Please do us so called "MORONS" a favor and go back to lymeaid.I am sure you have plenty of knowledge on this subject, but with your constant insults,It seems you are no longer adding any value to this forum and have worn out your welcome. Not only that but buy the "SOUND" of your text you should really try to relax a little.Anyway goodluck and thanks for stopping buy
 
everytime I post to help someone else I get shot down, I am not here to squabble with you or any one else on this forum, I am here to make sure that people who present to this forum know that they can have lyme disease.I called davey a moron and it was because he is hurting other people. just because you get a negative test does not rule out lyme disease. this is what slavin has been told and it is untrue.. now I have to really try hard to get slavin to understand the situation, davey screwed that up, why do you constantly attack me...why do you think you are always right?why do so many people on this forum that have lyme diagnosed because of me were told by you that there was nothing wrong?just ignore it is is bfs!that is the problem with you and the others that attack me, I am trying to get the info to people while you stick your head in the sand...some people are not benign and I intend to steer them in the right directions...neuro dont dignose lyme disease and that is the truth, they dont know what it is..

eric
 
Eric... dude...

your posts are not helpful. you're just trying to shout everyone else down if they don't subscribe to your theories, which you've never articulated very well anyway.

Lyme disease is extremely contentious these days, and the science does not support what you're saying. Your favorite lab, Igenex, has been investigated by health authorities in the past for returning way too many false positives (under controlled tests, btw).

Right now it's not possible to know with certainty what the truth is about lyme. it's even possible that much of what you write is correct. But the weight of the evidence is against that and until you come to the table with more than lyme propaganda, perhaps this isn't the right place for you.
 
they are investigated because they give the truth,regular lyme tests wont show positive because of the insurence companys making the testing very light.. that is the real problem so I need to make sure people know about that and sorry for calling you a moron, what i think is that you should let people know that if they think that they have lyme then they should go to a lyme chat board as this is very important to posters here. remeber the insurence companys dont want to pay for treatment so that is why the test are so light.. igenex is much and i mean much better at testing...
by the way the people who have lyme on this forum dont post however they email me and tell me that alot of people feel that if they post about lyme that they will get static from some of the people on this forum, and also I might add that alot of people in this country suffer because the doctors were wrong...
 
Quick note: I'm not davey, I have a similar handle though...

First, it's amusing lyme protagonists don't want to come here for fear of being harassed when it's clearly the other way around.

And as for Igenex, as I recall, it was a controlled test in which blood known for sure not to be infected with lyme was sent in (without their knowledge). I think almost 40% were false positives. I admit I'm fuzzy on the details but it didn't inspire confidence.

It's strange how this devotion to Igenex seems to draw something akin to a religious fervor...
 
they used blood known to be negative.

if you're saying it was still positive unbeknownst to health officials, well, i suppose the next argument will be that more than 40% of the population has lyme...
 
we dont know how many people have lyme,we just know there are inconsistincies in the testing, causing alot of false postitive and false negatives,


eric
 
I've done some basic Googling, and can't find much on the topic. I did find some chatter back in 1999 that the state of NY questioned one of IgeneX's PCR tests for babeosis. Which might explain why a few of IgeneX's tests (mainly PCR type) are marked as "not available in NY". I don't see any other state in the union with an issue. It's now 2005, can someone please provide some hard links or references regarding this IgeneX investigation, how the investigation took place, what were the issues? Is there a study posted? Were any findings made public? Were any motions filed? Press releases? Is IgeneX non-accredited? Does the CDC have any information either for or against IgeneX?

I'm just a factual person, and I like to see some reliable sources regardless of pro or con.
 

Users who are viewing this thread

Total: 1 (members: 0, guests: 1)
Back
Top