Hello everyone,
I am new to this site - I came across it yesterday and was very glad that I did. I really found it helpful to read other people's experiences and stories - I found them to be very reassuring.
Like many, I have always had the occasional twitch or fasciculation that might last for a day or two and then go away. A little over 5 weeks ago I developed a twitch in my left index finger and lower lip. I figured they would resolve over the next day or two, but they didn't. Within a week I was noticing more twitching off and on in other areas - arms, legs, back, trunk, behind my ears, etc... I work in health care and immediately feared the worst. I called a colleague and had a (60 minute) neurological exam that same day, which was completely normal. A week later, I had an EMG, also normal aside from a couple of fasciculations in one thigh. Lots of blood work - also all normal. In spite of this, I continued to have a lot of anxiety, and the twitches became worse. My wife could not understand why I was still worried with the normal exam and tests...and it is hard to explain because RATIONALLY you know you shouldn't worry but humans aren't always rational.
Over the holidays things got a bit worse and then better with some R&R but the first day back to work they got bad again. But I find that every day that goes by I feel a bit better about things and am able to cope with the twitches a little bit more. Reading all the postings made me realize that I am not alone in this and that many others have gone through the same things - the constant vigilance, the exercise/strength testing obsession, etc... My symptoms seem to be absolutely classic for BFS and that is very reassuring. Like many, I seem to be finding that the simple passage of time is reassuring as well.
So that's my story for what its worth. Thanks to everyone for sharing their experiences and for being so supportive of others who have come looking for reassurance. Like so many other things in life it really helps to communicate with others who have gone through this and are now "out the other side" and doing well.
Take care,
Jeff B
I am new to this site - I came across it yesterday and was very glad that I did. I really found it helpful to read other people's experiences and stories - I found them to be very reassuring.
Like many, I have always had the occasional twitch or fasciculation that might last for a day or two and then go away. A little over 5 weeks ago I developed a twitch in my left index finger and lower lip. I figured they would resolve over the next day or two, but they didn't. Within a week I was noticing more twitching off and on in other areas - arms, legs, back, trunk, behind my ears, etc... I work in health care and immediately feared the worst. I called a colleague and had a (60 minute) neurological exam that same day, which was completely normal. A week later, I had an EMG, also normal aside from a couple of fasciculations in one thigh. Lots of blood work - also all normal. In spite of this, I continued to have a lot of anxiety, and the twitches became worse. My wife could not understand why I was still worried with the normal exam and tests...and it is hard to explain because RATIONALLY you know you shouldn't worry but humans aren't always rational.
Over the holidays things got a bit worse and then better with some R&R but the first day back to work they got bad again. But I find that every day that goes by I feel a bit better about things and am able to cope with the twitches a little bit more. Reading all the postings made me realize that I am not alone in this and that many others have gone through the same things - the constant vigilance, the exercise/strength testing obsession, etc... My symptoms seem to be absolutely classic for BFS and that is very reassuring. Like many, I seem to be finding that the simple passage of time is reassuring as well.
So that's my story for what its worth. Thanks to everyone for sharing their experiences and for being so supportive of others who have come looking for reassurance. Like so many other things in life it really helps to communicate with others who have gone through this and are now "out the other side" and doing well.
Take care,
Jeff B