Welcome to the Forum, Dom!

[ixyr3y3z]

Hi everybody.I'm Dom, 29, from Italy, and most importantly really glad to be here. I'm happy such a place exists, and just lurking and reading it has helped me so often in the past to just get through the rough days. Thank you all for this, much love.I twitch since February of this year, and have been having other symptoms such as pain all this time as well. By the beginning of July I had an EMG done by my neuro which turned out a bit "dirty", showing a chronic neurogenic changes in both my legs.Blood exams turned out borderline positive for Borreliosis which is why I got treated with antibiotics for about 3 weeks, but the symptoms are still here, as well as my fears.I don't know, I guess I'm just really insecure, and so is my neuro. She said a Borreliosis could explain such symptoms but I only have the virus borderline and it's strange because I have never experienced a rash from a tick bite, and the fasciculations don't fit that lime disease picture. She says she doesn't think I have a MND, but of course being a bit hypochondriac and pessimistic generally speaking that doesn't cheer me up too much.I know I'm an idiot, but reading stuff about chronic neurogenic changes, and more importantly their importance for ALS diagnosis according to the latest Awaji criteria (link: ), just makes the downward spiral turn fast for me some days. The fact that my twitches which are spread all over the body but mostly in my right arm got even more frequent lately, the fact that I'm having strange feelings of soreness in my right shoulder even at the slightest exercises (like brushing my teeth) and the fact that I keep getting a tremor in my right arm (and only in my right arm, my left one is normal) when contracting my arm muscles doesn’t help of course.I know I should think positive and everything, but most days I just can’t.The worst thing is that sometimes when I look at my beautiful 7 months old son and my fiancée (which are genuinely the best thing that has ever happened to me in my life) I just burst into tears, thinking that if everything goes wrong I won’t be here to see my son grow up. I try not to show my lady my sorrow too much but sometimes it’s unavoidable.Sometimes I feel guilty to bring this **** over our (aside from this) all so happy family, and I could punch myself for not being able to give it a rest and just enjoy this great life we have.I don’t know. I have another neuro appointment on Friday, and mixed feeling on this of course.That’s my story. Glad to be here I guess. Or maybe not if I just think about the about the reason…Love,Dom

 

[antman]

All I can say is I was in the same boat when my symptoms occurred. I am a worrier by nature, so when this started for me, I naturally did not handle it well. I do believe my heightened anxiety only made my symptoms worse. Getting a clean EMG and a BFS dx from a good neuro were the most helpful things for me. I may be short on advice, but I can say you're right, that focusing on the positives in life, while not always easy, can help your overall condition.

 

[OptimisticGuy]

I will echo the previous advice given ... Stay positive and try to reduce your anxiety !! I am not a doctor but if your showing those changes and you doctor wasn't concerned about serious illness them i would try not to worry ! There could be various reasons for this ! Please try to stay positive and get rid of your anxiety and you will see changes for the better !

 

[Gracer]

Hi Domchronic neurogenic changes in legs are not distinctive after approx 25 yo due to the fact that leg axons are the longest in the body and thererfore till 25 they already have certain damage. That is why doctors usually do not rush in doing leg EMG - it would be MOST PROBABLY dirty and this would mean relly nothing. And if you diverted yourself to any medical criteria, you should know than that they never could be applied one by one, you should have certain combination to be just CANDIDATE for possible diagnosis.Therer are many fellows here with denervation signs in the legs, no one has ALS however.