hightopmaniacdmann
New member
First of all I would like to say hello to everyone!I am new to the forum but not this syndrome. I have been living with BFS for 3 years and I remember it starting with a twitching finger and now it's a 24/7 thing that has spread to my whole body. No muscle escapes this thing. Had 3 EMG's and looks like no ALS 
, so good news.Actually this goes back to when I had bad vertigo for about 3 years before I was diagnosed with BFS and that alone was a son of a gun in itself. After many ear exams and balance tests they said I had migraine associated vertigo. I didn't feel like I had a migraine but I have been feeling it for the last 3 years, so much so it hurts to even wash my hair or touch my scalp it tingles so bad. Cannot focus at all and this constant pressure that feels like I am falling to the left. I was wondering if anyone else has the migraine thing going on with the BFS?The other area I deal with is fatigue, and some days its really bad. Feels like I am standing on wet sand and I'm sinking into it, have to catch myself because I feel like I'm going to fall. Along with that there are days (especially after a workout, and 2-3 days later) that I have the feeling of walking through water. Kind of like that type of resistance and heaviness. Anyone else have this issue?I also get the cramping, especially in the calves and fingers. My fingers with just lock into a position if strained a certain way and will for a while until I stretch them out.Hello all and look forward to the information and support on this forum,Dman7800
, so good news.Actually this goes back to when I had bad vertigo for about 3 years before I was diagnosed with BFS and that alone was a son of a gun in itself. After many ear exams and balance tests they said I had migraine associated vertigo. I didn't feel like I had a migraine but I have been feeling it for the last 3 years, so much so it hurts to even wash my hair or touch my scalp it tingles so bad. Cannot focus at all and this constant pressure that feels like I am falling to the left. I was wondering if anyone else has the migraine thing going on with the BFS?The other area I deal with is fatigue, and some days its really bad. Feels like I am standing on wet sand and I'm sinking into it, have to catch myself because I feel like I'm going to fall. Along with that there are days (especially after a workout, and 2-3 days later) that I have the feeling of walking through water. Kind of like that type of resistance and heaviness. Anyone else have this issue?I also get the cramping, especially in the calves and fingers. My fingers with just lock into a position if strained a certain way and will for a while until I stretch them out.Hello all and look forward to the information and support on this forum,Dman7800
many of our fellows had them according to their own accounts, and often it is limited to auras, not to migraine itself. I mean we seldom complain for painful manifestations, but rather often for optical auras, for example.If vertigo comes and goes, it is usually a neck ciruclation issue but constant stubborn one without any other reasosn could be really a migraine phenomenon, I think, because generally migraine is as well unexplained and often stress-realted condition, as BFS...as for fingers cramping, I share this with you. In my bad days sometimes even taking a spoon makes my hand freezing in a weird crampy position, and putting a shoe on causes this with a foot. doctors call that spasmophilia and usually it is also either 1) anxiety related due to hyperexcitation of nerves or 2) a sign of poor operation of parathyroid glands. I probably have both reasons, since i am low on Ca - but fortunately this is also on/off condition.