Hello everybody,
At first I must mention how glad I am to find this site. Like most of you I walked through the same fear like the most of you. My story in a short form:
December 2002 I noticed that my forefinger started to twitch for two or three seconds, a couple of times every day. In January I visited my GP because I was meanwhile worried - the twitches were at my whole body
( the twitches were visible under my skin, last always only two or three seconds and were at random). The GP prescribed me magnesium - but after 3 weeks I went back because it didn`t help. At this time I started
to browse through the internet to find informations about the cause of twitches - and it happened what most of you experienced - the ALS informations drove me crazy. I went to a neurologist and told her about my problems and my fear - her answer was "I am 60 years old and have only seen 3 patients with ALS" - then she made a rush neuro exam ( 30 seconds) and that was it already. After this bad experience I visited a second neurologist - the nearly the same story. The difference was only that he made a full neuro exam - but without an EMG. Meanwhile I knew how important an EMG is, but he rejected it (it is not necessary). Then I went finally to a hospital and they did beside the neuro exam also the EMG - it was clean. But all three neurologists didn`t know what it can be.
Nobody of them mentioned BFS. So I am so glad to find this informations here - they helped me more than the doctors. Meanwhile I am not longer so much worried. I have the twitches now 4 months - but they become less. I test my strength with workouts every second day to have more peace.
Apologize my English, it is not my native language.
Good luck for you all!!
uben
At first I must mention how glad I am to find this site. Like most of you I walked through the same fear like the most of you. My story in a short form:
December 2002 I noticed that my forefinger started to twitch for two or three seconds, a couple of times every day. In January I visited my GP because I was meanwhile worried - the twitches were at my whole body
( the twitches were visible under my skin, last always only two or three seconds and were at random). The GP prescribed me magnesium - but after 3 weeks I went back because it didn`t help. At this time I started
to browse through the internet to find informations about the cause of twitches - and it happened what most of you experienced - the ALS informations drove me crazy. I went to a neurologist and told her about my problems and my fear - her answer was "I am 60 years old and have only seen 3 patients with ALS" - then she made a rush neuro exam ( 30 seconds) and that was it already. After this bad experience I visited a second neurologist - the nearly the same story. The difference was only that he made a full neuro exam - but without an EMG. Meanwhile I knew how important an EMG is, but he rejected it (it is not necessary). Then I went finally to a hospital and they did beside the neuro exam also the EMG - it was clean. But all three neurologists didn`t know what it can be.
Nobody of them mentioned BFS. So I am so glad to find this informations here - they helped me more than the doctors. Meanwhile I am not longer so much worried. I have the twitches now 4 months - but they become less. I test my strength with workouts every second day to have more peace.
Apologize my English, it is not my native language.
Good luck for you all!!
uben
