Welcome Back! Milestone Celebrations!

sherlockholmesz2

Well-known member
Hi Gang.

Just checking in again to let ya'll know that two major milestones have come to pass for me. One is that it's been three months and one week (almost to the very day) since my twitching started and my symptoms have not progressed. There's still no clinical weakness anywhere. Any bad disease would surely have made itself known by this time. The second milestone is that last week my therapist released me after going the entire month of November with no complications! I really think I've beaten my anxiety! YAY!

Oh I still have muscle aches, mild twitching, restless tongue, and fatigue but it's all transient and variable in intensity and doesn't bother me if I don't think about it. I'm still on Zoloft and I'm convinced that's helped me a lot. I've gained over five pounds in the past month or so. I've got a bug of some sort today (home from work) but it too shall pass. I've noticed increased twitching in my calves since the bug set in. I'm sure there's probably a connection.

On Monday, September 6 (Labor Day here in the US) I was sitting in the ER rehearsing how I was going to tell my parents I had ALS. That's where I was three months ago. Of course since then I've had a negative MRI, about four normal neuro exams, and...the biggie...a big ole negative EMG. I've come a long way and I couldn't have done it without the support I found on this board! I LOVE YOU ALL!

Like someone else here said to me earlier, I treat my bfs like a friend that comes to visit occasionally. I acknowledge him but do not give in to him. That only fosters anxiety. It's hard sometimes, but it's doable. Sometimes chemicals help! lol

To all the newbies, please take heart. If I can cope with this ANYONE can! Anxiety can be made to go completely away. BFS may not go completely away, but it can be cohabitated with. Don't give up and don't EVER feel bad about asking for support!
 
Congratulations!! Your message really sums up the elation one feels when they get a clean emg or pass a milestone benchmark -- in your case the 3 month mark.

As hard as the lows are early in this BFS journey, the highs are worth it.... well, almost!!!

Enjoy your good health!! :D)

Ava
 
Congrats ! It's wonderful to see such happy, worry-free posts! Good for you! I can feel you smiling through your post. It's great! Enjoy, enjoy, enjoy that wonderful feeling of freedom you must feel.

Keep smilin' !

Barb
 

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