Welcome Back: Coping with Twitching

[coty721]

Hi there everyoneI haven´t been in here fore a while, because even though some of you people have helped me more then anyone, I notice I get really stressed by some topics. I know that must people here dosen´t meen to. Its just so hard to have this. Yes I´ve still twitch ALOT eventhough Im feeling much better then before. I twitch everywhere and it still comes in new places, and everday im deling with anxiety and "what if". But I´ve realized thanks to some nice people in here and the doctors and my emg, that it dosen´t matter where you twitch, how often and what kind of twitch you have! Als is a very rare diases and it almost never starts with twitching. And the specalist I want to said he also had fasics and have had them for years and that he could take one look at me and he knew i didn´t have als. And one more important thing "with als you dosent feel weak, you ARE weak, you try to walk and all of a sudden your leg cant carry you".So I and everyone in here have to try to stop think "what if". I think that its very important that we try our best to accept the fact that we are going to have this maybe our hole life and it still isn´t als! I know its easier said then done and I pry everyday that this twitching will stop but it dosen´t, I still look if im as strong as before if I can do all those test I did at the neuro. I know I have to stop but Im working on it.I want to thank the people in here that from the bottom of my heart for taking your time for me and explained that you had haved the same thing, it really helped and still helps me./Linda

 

[DonJose]

Hi Swedish Girl, so good to see you back and posting. Glad you are doing ok!!Linda

 

[TompeteA]

Swedish Girl, That little "what if" is the hardest thing to kick. I think once we can truly, and honestly convince ourselves there are no more what ifs, and this is not a smoldering case of ALS, the symptoms will ease greatly. I had a neurlogist who I saw early in my symptoms say to me when I saw him a year later, "my god, 10 years from now you will still think you have ALS, but you would have already been dead for 8 years". We have to kick the "what ifs", I hope it does not take me 10 years.