Hello,I'm a french new member (I've seen the french forum, but this part of the forum seems very sympathic and I need to improve my english 
) ), so I'm aware I do a lot of faults and hope you will excuse them (you can say me if it is too awful to read ...)I'am 37, mother of three chidrenn aged 5,3 and 1.I used to have cybercondiacs tendances, and discovered the name of "the disease who must not be named" last year, in may when a friend of mine said her sister in law was ill of it. Then, I do what i never had to : googled it. First of all I dont undersatnd what "fasciculations means", then nothing happened. A month after; I ha dth very bad idea to google this terme, understood it and, experienced it for the first time an hour later 
!Then it becomes more and more "twitches" (i'm not sure of how you say), some like heats beating, or what i call "blop", that is isolated abd brief contraction muscular. I think I had this before from time to time: this sensation is not "totally new", and my husbad notice on him the same thing from time to time. So I'm aware of a physiological part of these sensations.I'm a physics teacher, so i'm able to think with logics most of the time. But, my inconsciens let me think to most siniter issue ... and i'm here to ask yous advice, because lots of people in this forum seems to have lots of knowledges about all this .I notice it was worse when i breast feed my last boy and it improveed when i stopped two months ago (i was tired with three pregnancy and brest feadind in 5 years). I went back to work last september and work a lot, so i know i'm very tired these months.I do a lot o f dance (rock and roll and acrobatic rock and roll) so i can't say i have any troubles of coodination nor weekness.I can see dissymétry between my hands if i look carafully i interpret them like atrophy if my mood is bad, but it can be that i'm not fat at alll (is there a word in englih for that?).So my question is: do my symptoms (isolated for the most or rapid some time to time involunteer contarctions, some pain in muscles from time to time, some sensations like near cramping if I think to it, or dissymétry in not fat hand when i carafully look at them) make think at bfs, or at other think ...My family doctors examined myself (test clinics, babinsky and so on, he knos the awful disease, he diagnosticed it twice in the last 20 years), and told me i was good, he told about what we call here "spasmophilie". My psy who work in a hospital with patient suffering of this awful disease too, said me that after 6 months of twitches i will have already be very very weak. My seances of hypnosis work to reassure me when i have the time to go and see her!I follow the advice of my doctor no to go and see a neuro because, it was absolutely inutil for him. Do you think i ust go on and try not to think and is there a way to stop this ?It begins just aftyer reading the definition of the word fasciculation, so is somebody here have also a "hypocondriac beginning " of symptoms ?Thank you for reading, and all my excuses for my english (i only practise when watching films in VO ...)
) ), so I'm aware I do a lot of faults and hope you will excuse them (you can say me if it is too awful to read ...)I'am 37, mother of three chidrenn aged 5,3 and 1.I used to have cybercondiacs tendances, and discovered the name of "the disease who must not be named" last year, in may when a friend of mine said her sister in law was ill of it. Then, I do what i never had to : googled it. First of all I dont undersatnd what "fasciculations means", then nothing happened. A month after; I ha dth very bad idea to google this terme, understood it and, experienced it for the first time an hour later !Then it becomes more and more "twitches" (i'm not sure of how you say), some like heats beating, or what i call "blop", that is isolated abd brief contraction muscular. I think I had this before from time to time: this sensation is not "totally new", and my husbad notice on him the same thing from time to time. So I'm aware of a physiological part of these sensations.I'm a physics teacher, so i'm able to think with logics most of the time. But, my inconsciens let me think to most siniter issue ... and i'm here to ask yous advice, because lots of people in this forum seems to have lots of knowledges about all this .I notice it was worse when i breast feed my last boy and it improveed when i stopped two months ago (i was tired with three pregnancy and brest feadind in 5 years). I went back to work last september and work a lot, so i know i'm very tired these months.I do a lot o f dance (rock and roll and acrobatic rock and roll) so i can't say i have any troubles of coodination nor weekness.I can see dissymétry between my hands if i look carafully i interpret them like atrophy if my mood is bad, but it can be that i'm not fat at alll (is there a word in englih for that?).So my question is: do my symptoms (isolated for the most or rapid some time to time involunteer contarctions, some pain in muscles from time to time, some sensations like near cramping if I think to it, or dissymétry in not fat hand when i carafully look at them) make think at bfs, or at other think ...My family doctors examined myself (test clinics, babinsky and so on, he knos the awful disease, he diagnosticed it twice in the last 20 years), and told me i was good, he told about what we call here "spasmophilie". My psy who work in a hospital with patient suffering of this awful disease too, said me that after 6 months of twitches i will have already be very very weak. My seances of hypnosis work to reassure me when i have the time to go and see her!I follow the advice of my doctor no to go and see a neuro because, it was absolutely inutil for him. Do you think i ust go on and try not to think and is there a way to stop this ?It begins just aftyer reading the definition of the word fasciculation, so is somebody here have also a "hypocondriac beginning " of symptoms ?Thank you for reading, and all my excuses for my english (i only practise when watching films in VO ...)
I have already seen 3 neurologists, had 2 clean EMGs, and numerous clean clinical exams. I no longer have what is called "hotspots," meaning a twitch that stays in a place for a long period of time. I used to get them all the time, and they really worried me. However, after diet modification (eliminating gluten, caffeine, chocolate and soy and eating more lean protein) I no longer get hotspots. There are many causes of BFS: for many it's diet, for others it's a virus, or hyperventilation syndrome, and for some it's a physical manifestation of anxiety. So there is likely not one cure for all causes, but diet modification worked for me. For many there is no cure but they have come to accept the fact that they twitch and its harmless.