Does/Did anyone find that several months into the twitching process they started to feel more weakness and more fatigue? I essentially felt fine strenghwise until about 2 months ago which would have been nearly a year into this whole thing.
I know I did feel and felt weaker over the course of this illness. However that may be due to me not excercising like I use to.
I know I am loosing muscle mass due to the same fact. BCFS causes excercise intolerance and will consequently cause one to get a little out of shape and over all weaker. Not that this is ALS but a mere fact of "If you don't use it you lose it" nature of things.
I keep walking but it's not like it use to be and before I forget muscle tone will also decrease. I'll get back to normal sometime in the near future. I hope to return to the gym full time next week. Not like before but to simply keep my muscle tone.
The sensation of muscle weakness and fatigue is the worst part of this condition for me. I am capable of doing what I need to do but it is very worrisome when you feel mentally that you might not be able to count on your muscles. It seems to have eased off where it is not as bad as it had been but is still there on and off. I did swim and exercise in the pool for about 1/2 hour the other night and was waiting to have a bad day the next day...lo and behold, I actually did well and felt a little bit better? Some mild increase in the twitching but hey, I was able to exercise again. I would think the key in all of this is moderation in everything.
Kit
Its hard to say, my legs are definately not what they used to be. I read about people here who go out for 3 mile runs, but there is no way I can even run for a bus, then again the main reason I cannot do that is because of Asthma.
