Waiting Two Weeks for Test Results

PuppyFurryFunTimes

Well-known member
Talked with her, she did all reflexes, asked a ton of questions & said I seem to be a text book case of Myasthenia Gravis... Did more blood work & will know in about 2 weeks. She said if all comes back normal then she will schedule an EMG.. This will be THE longest 2 weeks ever!! I guess I just don't know what to think...
 
Looks like we have jere at least a fellows witgh the relatives suffering myastenia gravis (if not suffering it themselves). As far as I know it is not regarded any more ad death sentence and there are medicines to help with it.Hold on, we all hope for better results with you.
 
Well if you aren't straight BFS, then I'm inclined to believe you might have MG and BFS. The story of your twitching and how it progressed widespread is very, very BFS-like and twitching isn't one of the common symptoms of MG that I'm aware of. Also, MG is treatable and those with it can expect normal life expectancy. I'm hoping this pans out to be just BFS....keep us posted.
 
I agree with Johnny on this. I believe that your neuro is thinking about MG because of your lazy eye, but you noticed you have it since a eye surgery, so I don't know how much weight to put on this symptom. From the rest of the sx you were describing here you sound like BFS, and if she did not find any clinical weakness in her exams, it is all down to perceived weakness and twitching (=classical BFS) and a lazy eye.
 
Yeah, she did not seem too concerned about my twitches, she just said that if it's negative then she will schedule an EMG. She said she didn't want to scare me but I'll take the MG any day over you know what! She actually said this: "if it's negative then I'll have you come back to do an EMG for ALS." I about PASSED OUT. Maybe she said that because I mentioned ALS a couple of times plus I had that neck weakness & I've had an issue with my right leg tiring. She also said she was going to test for lymes as well but she did something to tire my eye & I guess it worked. I hope this is over soon, I'm stressed so bad I have trouble concentrating on anything else!!!
 
Well, Missy, my dear, I am 150% sure you should read the words of your doctor as "schedule EMG to rule out ALS". Actually, some of neurological diagnoses (including BFS) are diagnoses of exclusion. If Lyme, MS, MG, neuropathy of other kind and ALS are excluded - then must probably you have a BFS.Nobody makes EMG to CONFIRM BFS. I also had it in order to exclude motor neuron damages. There is generally no test to prove or confirm BFS. Only after other nasty or deadly diseases are excluded positively on the basis of exam and EMG/MRI etc., then you could say - heh, it is BFS for sure.
 
True!!! I hope I'm just hyper sensitive to what she was saying... Lyme test came back negative!! That's why I love this board! You guys make me feel so much better!! :) she also said I passed all her tests very good, lol. But it's not like she had me lifting weights!!
 
When I was seen by a neuro a couple months ago, he just said, " I bet you can't even see the twitches," as though they were some figment of my imagination. He said this as he was basically pushing me out the door. Did your neuro tap the bottom of your foot with the hammer? What kind of test was this? I didn't even know what he was looking for since my shoes were on and I couldn't see anything move when he did it.
 
She did the babinski thing but with my shoes off, she wasn't really alarmed by anything, she just kept saying the myasthenia Gravis.. Then she said if that's negative then we do emg. It was all a lil fast and I almost didn't know what she was doing poking & prodding me with sharp sticks & metal things!!
 

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