Vent: Muscle Fatigue Returned

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garymills

Well-known member
Hey all,

I don't really post about myself much anymore, but i have to vent. I have been twitching for almost 14 mths., and today has been one of the worst days I've had in a long time. It actually has been getting worse for the past couple of weeks and it is so frustrating. Just when I thought I might be improving, the muscle fatigue in my shoulders has returned with a vengance. The big muscle in my thighs (quads) have been twitching like crazy (both the big thumpers and tiny vibrating ones), my back, shoulders, triceps and as always my calves.

Anyway, I'm just feed up with this crap right at the moment and just want to be "normal" again. Truthfully, I've grown accustomed to the twitches, but when the achiness and fatigue hit with this type of intensity it is hard to deal with.

Oh well, it could be a lot worse.

Gary
 
Gary-

I know how you feel right now. You are absolutely right to know that things could be a LOT worse, though. That being said, I know that it is hard to hang in there when you feel like with time this should/will subside. It is 10+ months for me now and I have had some huge thumpers in my back with twitching in my tongue and neck again. Every day I wonder why my daggone hand is still so numb and difficult to use. I wish I could take a nap every afternoon because I am so tired, but the kids just won't let me.
It just helps to know that we have the peace of mind, with the passage of time, that this is not moving in another direction. Remember wanting the time to pass so you could know, for sure, this was not something worse--no matter what the tests/doctors told us? Take heart, friend, you're on the roller coaster with many a ticket holder and we all seem to experience the waxing and waning of these irrational symptoms. This, too, shall pass. Ride it out as best you can and gripe all you want, you have lots of ears out here and people who would be glad to repay all of your supportive messages. Get some rest...it can only help!

ariza_z2021
 
We all know how frustrating this can be. I thought that since I had a good neuro visit the twitching would get better but nooooooooo it got worse. I also feel like I'm getting tendonitis in both hands. All I want is a normal, simple life and to be able to think about normal everyday things again. When my friends whine about their lives I think how lucky they are that they can complain about such stupid things. I think we really appreciate life now--we just have to find a way to get past this and be happy! Gary, just try to hang in there. You will be ok. With time you will find a way to deal with this and in the meantime we will listen and understand.
 
Hi Gary,
You're so right...you don't post much about yourself, rather you're always a tremendous help and a comforting shoulder for the rest of us!

It's about time we can lend you our shoulders in return!

Since I came to this board, my mindset about BFS has been so much better...and you've played a big role in that. I remember after my very first post, you were there to help me out! What can I say? I know you have the right mind set, so I don't need to offer any 'snap out of it' wisdom. I agree with you--the bouts of fatigue are the worst, far more so than the twitching. Curl up with a good book or a good movie, and simply take it easy for the next week or so. I'd suggest getting a massage--but unfortunatly, I always twitch more after them--so that's out. Glass of wine instead??? Try to smile as much as possible--somehow that always lifts the spirit. I'm doing my best to send good vibes through my keyboard---hope you can feel them. I'll be taking a few days off from the board (vacation with the family)--but I hope that you're feeling much better when I get back. I'm sorry you feel so crappy, and I definitely sympathize my friend. Take care of yourself, and talk to you soon!

Amy
 
Ohh Gary,

VENT AWAY!!!!!!

You are always such a comfort to all of us here at the forum.

I'm sorry that you are going through this right now, and I (along with everyone else, I'm sure), wish we could do something to help besides replying to your post.

Please know that prayers and good thoughts are coming your way.

Ginny
 
Be tough Gary. This "thing" comes and goes. (more comming than going). Be strong and persist. Have a few, and enjoy the kids. They grow sooo fast.

Cheers ;)
 
Soooo Sorry you are feeling like that again Gary. You are such a good support for us all and unfortunately it's your turn to need us, but we are here!

Hoping you get through this quickly!!!
 
Oh no my biggest hero on this board is having a tough time! I am sorry to hear this. You can vent as much as you want. I tried using the advise of Hot Rod today and ignored the twitches and it worked well until now that I'm home and have nothing major to do.

I'm sorry this is happening now when you were doing so well. I am sure you will bounce back soon and be there stronger than the rest of us!

Take care!

Karen
 
Hi Gary,

Sorry this is coming late, but I just logged on after taking a few days break, I'm so sorry you were feeling so bad, like so many have responded you have been a great help to me! I hope now that it's been a few days since you wrote this post, that you are feeling better!

Take care,

Saundra
 

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