GolferGalaxy
Well-known member
I wanted to stop in and give everyone and update. It's been awhile since I've posted on this site. I still check in and read from time to time though not as often as I used to. I won't go into too much history (if you're interested read my earlier posts).Not too much as changed excpet for my fear of ALS. November of 2008 I saw a second Neuro who insisted I seek psych help. I am a total non believer in that stuff but I wanted to be compliant and I will do anything to make this stuff go away. So after about 2 months of therapy I was told that I was pretty normal except for my obssession of ALS. I continued to see a psychiatrist until August of 2009. She had me on Zoloft and Klonopin for approx 9 months. My anxiety was reduced 80% but my symptoms weren't. Actually, some of the internal sensastion were decreased from the Klonopin. Anyway, I am totally drug free now. At this point I am only seeing a PA in the same Neuro Psych office. My symptoms remained virtually unchanged. Primarily I am dealing with a lot of internal buzzing and vibrating. Consequently, this causes fatigue and soreness in my legs almost all of the time. I do have twitching but it is not constant. I have had hot spots i.e. thumb, thigh,forearm and upper arm. However, twitching isn't my primary symptom. My legs don't feel "fresh". I continue to get visible muscle shaking upon minimal exertion. I still have a preceived weakness in my left arm. This does come and go but it still bothers me. I currently have a dull achiness/sorness in my upper left arm that has been there all week.There are a few things that have subsided or gone away. I used to get an internal trembling/shaking feeling that was different from the buzzing or vibrating. For example, I would have the sensation that the ground was moving below my feet. I would also get this in my neck/head upon waking in the morning. Thankfully, this appears to be gone.Clean MRI of the Brain & C-Spine in September 2007. Normal EMG & NCV in February 2008. Several normal clinical exams. The two Neuro's I've seen are highly trained in ALS. One performed a fellowship at an ALS clinic and the other is Clevland Clinic trained.I've seen 2 Neuros, 1 GP, 1 psych , 1 PA and I have two friends who are physicians. One thing they have all said to me is that BAD THINGS DO NOT HIDE. The fact that I have had symmptoms for this long without any progression is a very very good sign. I have been told several times that I do not have it. Also, they have indicated that there are just some things that just can't be explained medically.So, in conclusion, I think I am starting to turn the corner with this stuff. I am like everyone else on this site. I think I am going to be the exception, I worse off than they are...etc, etc. I think my condition may have been brought on by an aggressive workout regimen....but who really knows. In my experience things do get better but sometimes they get worse before it gets better.Hope this helps,CDC
~*~Amy~*~