Update on Persistent Twitching and Cramping

[sarahwithaH]

Hi everyone! I hope you are all doing well. I just thought I would check in and give you all an update. Last I was here I had my second EMG and NCV (one year apart from the last time). Both normal (told I have BFS) but I still had constant twitching in my right calf with major cramping. In fact, if I stand on my tiptoes I can induce a calf cramp. Well, I still have it and it is worse. No weakness but constant and very annoying thumps, bumps, twitches, spasms in my right calf. I do sometimes get twitches in other places but mostly it's the calf. I few months ago I had an eye twitch that went on for about 3 weeks and was CONSTANT. I think about what might cause this stuff all the time. I have a little trouble sleeping when the twitches are particularly jolting (like right now when I should be asleep) but that's the bad news.
The good news is I am still here, twitching away without weakness and I wanted any of you who have had clear EMG's and NCV's (or have been told you have BFS) to know YOU HAVE BFS. So, I hope it helps.
Can't say I never worry but it's getting a little better.
Thanks to this site I made it relatively sanely through the last two plus years.
Wishing you all well!
Twitchaholic )

 

[arizaz2021]

God Bless, this is wonderful news! Sorry about the cramping. There were some supplements recommended on this site a while back. You might also ask the pharmacist if you get a chance, if you haven't already.

Thanks for sharing!

ariza_z2021

 

[twitchamy]

Thanks for the update. It's obvious from your post that your symptoms are still annoying (to say the least)-BUT you have an awesome attitude and you aren't letting the symptoms beat you. I agree with you about this site--I feel it helped my sanity as well.

I'm also curious to know if you've tried any dietary changes or supplements. I'd suggest eating a banana every morning. I know cramps can be part of this 'syndrome'--but here's hoping you can find some relief from them soon!

Amy

 

[usysparawl]

Congrats! I am glad to hear another one-legged twitcher (like myself) has passed two EMG's. All of my twitching is in my left calf (with a few exceptions) and it's been that way for 4 months now. I do have periods of time where it has not twitched (lasting anywhere from 2 to 6 days). Do you? Anyway, I haven't had an EMG . . . but passed a neuro exam and have a follow-up next month. Peg

 

[sarahwithaH]

Peg:
Yeah, I feel bad saying it but I am glad there is another 24/7 calf twitcher out there. Nope, never had it go away for more than 5 minutes in the last year. Just saw my neuro again Monday. BFS. I guess that's the good news.
Amy_twitch: Thank you for the nice words. I haven't tried much in the way of dietary changes. I did take potassium and magnesium supplements for a while with no luck. Truthfully, I can live with twitching as long as I KNOW it's benign.
ariza_z2021: Thank you! I think quinine is one of the suggestions but I admit I haven't tried it. I'll look around and see what was recommended again.
Thanks all.