Update on 14 Month Twitching

[SoloMarinker]

Hello to everyone,
After not having posted for quite a while and after 14 months of twitching bodywide, 24/7 in feet (especially left one) and after a follow up EMG yesterday I want to give you some update. Hopefully it helps some of you that are in fear of ALS like I am (starting to was). Everything is fine although there for me were alarming signs of disease:

1. my left calve is 2 cm smaller than the right one
2. my left foot is thinner, crampy and it hurts while walking (getting worse)
3. ratcheting muscles, fatigue, hotspots, twitching nearly everywhere

So my neuro didn’t find anything evil again and again BFS she said. She told me that its definitley not an neurological but probably an orthopedic problem and that no one is symmetric. Also she said that its not necessary to stick the EMG needles into your foot for testing it (she tested the muscle near the shinbone), for it would show up there also.

Twitching goes on and on but this fear-monster starts to lose its grip. I feel very relieved and try to keep my view straight ahead. I want to thank you all for being here on this lifesaving board in a very dark period of my life.

God bless you all!
Martin

 

[SoloMarinker]

Hello to everyone, I was busy for quite a while, and when I cam back today I found my old post crowded by all you guys.

Klag, excuse me for responding that late. Your experience (pain in the foot, difference in sizes, hands falling asleep at night, bodywide twitching) matches mine. And I also do not know what is going on. My left foot is twitching for 1 year now and sometimes when I think I have atrophy, I wonder why my muscles are still working but they do. And so I move on.

In the last 15 months of bodywide twitching I spent so many times with thougts about the possibility of dying, that at least I nearly lost my fear. Being confronted with mortality is really no fun, but overcoming that crisis (and 4evaypoppypassport you will) you do get an idea what life is all about.

At a point in my story I faced the posibilities... I am trying to get a big piece of life. To me, mortality starts to give life a meaningfull flavour.

Klag, you are well, even as much as I am, and I wish you do know it very soon!

Or to say it in Bassos inimitable way:
Worrying about sizes and pains keeps you stuck, and then eventually sucks you down. When we jump off the "worry train" we are now really on a trip that goes somewhere special. We are ready to swept up into the person we really are, into the magic that being alive really is.

Thanks to all you lightbringers on this board
Martin