Update: 6 Months of Symptoms

[GolferGalaxy]

Hi all,I joined this site in Feb 2008, just 6 months after my ordeal began. My initial symptoms started September 2007. They began after a strenous excercise routine (don't know if that's what started it or what). Anyway, I'm here to post the obligatory update. Mri of the brain & c-spine Sept 2007 - normalCat Scan of the brain Sept 2007 - normalEMG February 2008 - normalMultiple clinical exams - all normalTons of bloodwork - normalI've been seeing the same neuro for 3 years now and he's says that he has no idea what is wrong with me. I went to a second opinion doc September of 2008 and he says I don't have "it" and basically kicked me out of his office (not literally but sure felt like it). He said it was anxiety (my regular neuro concurs).So I played the compliant patient.........went to a psych doctor, got therapy and took zoloft for almost a year. No improvement. What I have is not caused by anxiety, period!Nothing has really changed. My symptoms still include twitching, muscle soreness, internal vibrations, tremors, teeth chattering and fatigue. My main symptom is a feeling that my insides are constantly moving....this causes constant fatigue and muslce sorness. Also, my limbs visisbly shake upon minimal exertion. I haven't lost any strength although my endurance is nowhere near what it once was.I do have actually have one troubling development. I've now have a dent on my right thigh. It is in my upper/outer portion of my thigh. My right leg is sore and achy 24/7. It also feel awkward and shakey when I walk. Does anyone get this? I mention my dent to my neuro and asked him if he wanted to take a look at and he said "no".Any responses would be greatly appreciated!Thanks,CDC

 

[EyeoftheWild]

Hey, CDC. As you know I've been around for awhile and I've had bfs symptoms for over 5 years, but probably longer. I still have a host of symptoms which come and go. The only difference between you and me is that I went to the neuro once, never had any tests, and just accepted what he had to say. Denial, in that I didn't want to know if anything was wrong, was my ally at the beginning. If I didn't know, then I didn't have it.Your neuro(s) are being dismissive when they tell you it's anxiety. But, they are right on the mark that there is nothing wrong with you, at least nothing sinister. The second guy kicked you out of his office because he knew you had done the gambit of tests, and he actually has patients who are dying, and they are not pestering him like you are. The neuro can't keep telling us that the boogie man isn't hiding under our bed. We have to grow up and realize that there is no boogie man, except the one we create in our own minds. You say you don't have anxiety, but you can't get on with your life, because you are worried about why your body does what it does...in other words, you are anxious about what these continuing symptoms mean. Right? So, anxiety isn't at the forefront of your mind, but it sure seems to be on overdrive in the subconscious. You went to a psych, but they aren't very good at helping people with the kind of issues we have. What we have is a movie, a really shytty one, that keeps playing the same loop, over and over. We have to find strategies that allow us to play a different kind of movie, a movie that stars us, and not the boogie man. I doubt very much that you believe me, because you feel like you've uncovered these stones, and you are convinced something is wrong, but it sure isn't at the emotional level. Well, let me tell you something, it is a terrible shame that the modern world has come to view such a dichotomy between our emotional selves and our brain...don't our emotions come FROM our brain? Of course they do, they are part of an important process that keeps us alive, and conscious that we are alive. Otherwise, why would we care if we lived or died?I'm not surprised your neuro told you not to come in about the dent. Have you read Kit's sticky about dents and dips? Read it, or reread it! I wish I had a dollar for every time I read on this forum "a new troubling development." Whenever I read that I automatically think and know "this guy/gal is OK." You need to develop strategies that put having fun, enjoyment, and believing you are well, at the forefront. Only then will you be able to look at bfs with the kind of perspective that is needed. Right now you're just on the old hamster wheel, and looking for solace from your doctor or this forum will keep you spinning on it.Basso

 

[mommyLDN]

. Rest assured I have and have had every single symptom that you put down. I am not one who believes that this was brought on by anxiety. Although I do believe that there is a huge anxiety component to this illness, BIG TIME, its a symptom not the cause. With that being said, the anxiety that comes with this, takes anxiety to a whole nother playing field. Its very profound, and it will amplify these symptoms 10 fold. You have to make yourself stop caring about the symptoms, its the only way to move on. If you have had the test, and the neuro isnt concerned than you shouldnt be either. If you have all these symptoms with no clinical weakness, he wont be concerned. Weakness is key with almost all Neuro disease, seriously, sit and google different neuro diseases,(I cant believe I just told someone to google, I should be shot) but seriously, google different ones, and you will quickly see on their symptom list that "weakness" is always on the list. So if you dont have that kind of weakness with your symptoms, they wont be concerned with your symptoms, and will most likely blame them on stress or anxiety.I have a tremendous amount of fatigue with this. Hell my neuro was so unimpressed by my symptoms with lack of weakness, that he dumped me Take CareRobynn )