FabulousOne
Well-known member
Hello everybody,
Juste thought I might check in, to give some fresh news. I went to this forum soooo many times. And it sure helped me a lot. It came to my mind a few weeks ago that sometimes, people leave the forum, and give no news, which have the others worried ("what happen to XXX ? Did he... oh my god... did he died from als ??).
Jus want to let yout know that I am fine. I've been twitching since june 2004. With so much ups and downs. Als fear. MS fear. Bulbar als fear. You name it.
Exactly one year ago, I had an affair with another woman (i'm married). And I stopped caring about my twitching. This was THAT simple.
Now I am still married, and the affair is over, and I am still twitching, and one of my good friends died of cancertwo months ago, and it made me ponder a lot. The fear is over. I am the living proof that you can live with twitches and without the fear even if, at a certain time, you thought it was totally impossible (that was my case). I'm not saying you may consider cheating your wife or husband, god knows I've been trough an horrible time. What I am saying is : when something very important comes across your life, you may put things in perspective, not even in a conscious way, and your fears can leave you.
My twitches didn't change. I still have period of great stress. But now I'm thinking this : I have no more chances than anyone else to get Als. If i get it one day, so be it. I might also die in an air crash or in a nuclear explosion, who knows ? But the fear ceased to govern my life, and I think this is very important. For those of you who are coming here every day in search of definitive answers, I say this : I've been where you are, I know how you are feeling but believe me, you're not going to live with this fear for the rest of your life. Your mind is not going to allow this. So hang on. Have faith. Until further evidence, you only have one life, so enjoy !
By the way : I'm french. Pardon my english if it's not very good.
Fabrice
Juste thought I might check in, to give some fresh news. I went to this forum soooo many times. And it sure helped me a lot. It came to my mind a few weeks ago that sometimes, people leave the forum, and give no news, which have the others worried ("what happen to XXX ? Did he... oh my god... did he died from als ??).
Jus want to let yout know that I am fine. I've been twitching since june 2004. With so much ups and downs. Als fear. MS fear. Bulbar als fear. You name it.
Exactly one year ago, I had an affair with another woman (i'm married). And I stopped caring about my twitching. This was THAT simple.
Now I am still married, and the affair is over, and I am still twitching, and one of my good friends died of cancertwo months ago, and it made me ponder a lot. The fear is over. I am the living proof that you can live with twitches and without the fear even if, at a certain time, you thought it was totally impossible (that was my case). I'm not saying you may consider cheating your wife or husband, god knows I've been trough an horrible time. What I am saying is : when something very important comes across your life, you may put things in perspective, not even in a conscious way, and your fears can leave you.
My twitches didn't change. I still have period of great stress. But now I'm thinking this : I have no more chances than anyone else to get Als. If i get it one day, so be it. I might also die in an air crash or in a nuclear explosion, who knows ? But the fear ceased to govern my life, and I think this is very important. For those of you who are coming here every day in search of definitive answers, I say this : I've been where you are, I know how you are feeling but believe me, you're not going to live with this fear for the rest of your life. Your mind is not going to allow this. So hang on. Have faith. Until further evidence, you only have one life, so enjoy !
By the way : I'm french. Pardon my english if it's not very good.
Fabrice