Unusual Arm Sensations, MS Fears

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marie1978

Active member
It has been awhile since i posted almost a year....my sx have been pretty calm except for the past 2 weeks.....my left arm is feeling funny all the way down to my fingers...my fingers feel a little stiff and feel funny when i use them to pick something up...my strength is there but one finger will not stop twitching.
My fears are not als, but ms or parkinsons..
Last night while sleeping i felt my body tremor...at least i think i did because it did not continue when i woke up from it.
I am scared again and can not get it off my mind...
Thanks for listening any advice would be appreciated.
 
Hi Joanne,

Sorry to hear of your troubles.

I am not familiar with your posts, but have you been to a neurologist, and have you had testing done for these illnesses? If they were ruled out before, odds are your problem is still BENIGN! The fact that you are worried, will no doubt make things worse. Seeing a Dr. could help you rule this stuff out. But when they do, promise me you'll stop fretting over these things! My experience has been once the anxiety is gone, so are most of the sx's.

MS and Parkinson's are sometimes hard to diagnose, but what you describe doesn't sound like either one.

Good luck!

Kim
 
Hi,
I could relate to all of you. Joanne, I've had BFS symptoms a long time. When I think back, I had them over 10 years ago, but I didn't think about it or worry. THey got really bad 2 years ago this December. I t hink I've had every symptom on this board...well, maybe not every!
I get setbacks too. I had one last week that lasted about 4 days. My twitching in my legs are very noticable and I had a twitch in my left forearm. I could feel a sensation, but could also see the muscle going from my palm side twitching into my hand. I lasted for a couple of days. Then my eye started today. I also think that stress is a major contributer too. Oh well.
I do think that BFS is a very broad diagnosis and there are perhaps many conditions that contribute to it. Such as electrolyte imbalance, fibromyalgia, thyroid problems and so on. It is annoying, to say the least
My worse enemy in all of this is the fear. As I have stated in my emails before...

FEAR IS FALSE EVIDENSE APPEARING REAL

I have to tell that to myself a lot. Hang in there.

I would love it if there were a conference for people who suffer from BFS, but who has the time to get something like that together!? THere would be a room full of twitchers, that would be interesting! ha ha
This website is a God send!
Take care
Sue
 
Susan, the conference would be a great idea but I think more realistically a BFS Chat room might be very beneficial for a lot of people. I know I visit this site daily for my dose of BFS news and I think it could be very therapeutic for a lot of people. I have my good and bad days and as much as my family seem to understand I think chatting with fellow BFS'ers would give me that side of support that I (we) need. I know this idea has been bantered around before but perhaps we could start a ground swell and maybe Aaron or John could make this idea come to fruition!

I also want to thank everyone who contributes to this site, it comes in handy when I let my guard down and visit those ALS sites. I guess we never really let go of that thought and we all bide our time as time is the ultimate decider.

Anyways, keep smiling everyone!

Ray
 
Hey Guys...

The BFS chatroom won't happen on this site, John V. already nixed that idea...not because he didn't think it was a good idea, but because it was not feasible.

I am hoping one day that there will be a BFS conference (or at least get-together....) It would be great to meet other people who understand what it's like to live with this C***. Any volunteers to set one up?

Jen
 

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