CheshireCat
New member
Here I was doing pretty well for a few weeks and of course something else pops up. I am getting really fine twitches that I can feel but can't see in both shoulders (more in my left). They come and go but are present most of the day. It feels like a tickle with a feather. I also get them in other places, but not as often. Having some pain and discomfort in the same shoulder and my right hip as well. Don't know why it is bothering me but it is. It will make me feel better if others are getting the same.On a positive note I had a follow up with my neurologist about 10 days ago and he does not see any problems (of course this had not started yet). What I wanted to share with you though is that he said he was talking to the head of his group who is a predominant neurologist with many years of experience in a major city about twitches and he asked him when was the last time he had diagnosed someone with MND who came in with a primary complaint of fasics. He said never. The other doctor said me either. And neither of them had ever heard of it happening either. He said it just doesn't typically start like that.