Understanding TeleEMG.com EMG Info

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LaurentHCH

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Please read this from the teleemg.com website. I am not sure if I understand this rightly. Does this mean that an EMG ist only safe after 6 months after onset of twitching???? this contradicts everything that is said here!!! English-speakers, can you please tell me if I understand this rightly???A couple of questions:1) I have at least a thousand fasciculations a day. How come during the 3 EMG's (2 partials, 1 full) no fasciculations were detected? Seems impossible.2) Besides random fasciculations, I frequently have fasciculations right after moving a muscle. Is this more problematic than a "random" fasciculation?3) Is it likely that twitching can occur for six months without loss of strength and still get diagnosed with ALS??? Answer Actually it is not always surprising if the concept of EMG needle recording is understood. If the tip (or the recording pick up area) is far from fasciculating potential, then you do not see any fasciculations on the screen. For the second question, yes it is possible, and that is why a follow up EMG is usually needed. Regarding time period after onset of twitching without weakness or an abnormal EMG, it is difficult to be absolutely precise in time. But several months are usually acceptable by the time fasciculation is seen, but provided no other clinical/EMG findings.
 
is know it may freak up people like myself but i symply want to know the truth about the reappearing posts about the possibility of having an emg too early. I think it is time to let speak a real emg-expert on this site, no storyteller but an expert himself. An emg leads to the dx of bfs, so we need to know the timeframe for it after the onset of fascics.
 
I am going to get introuble for this but YOU NEED *beep* HELP! You have TESTED ME to the LIMIT! I wasnt NEVER gonna POST HERE AGAIN but you are so full of NEGATIVE ENERGY AND B.S I couldnt STOP MYSELF. WHAT U NEED IS PSYCHOLOGICAL EVALUATION AS I DID MYSELF. YOU NEED MENTAL HELP! Stop the bull *beep* on this SITE and get a LIFE. WERE NOT DYING, PEOPLE ARE !!! GET A GRIP block me never let me on this site again but its fulll of PEOPLE LIKE THIS TWIRP that I am DOWN RIGHT ASHAMED OF when people like MARIAJ are FACED with the "REAL DEAL" daily God bless her. GET A DAMNNNNNNNNNNNNN LIFE and I dont want explicitives EXCUSED. I think your FULL of *beep*. You love MISERY and MISERY LOVES COMPANY!GOODNIGHT!!!!!!!!!!!!!!!BTW saw the BLUE ANGELS AIR SHOW TODAY it was BEAUTIFUL!!!!!!
 
i just want to know the truth. a bfs-site that refuses a discussion about a Tests that leads to the dx of bfs is like a forum of hiv-negative people refusing the waiting time of three months to get tested - ridiculous.Your reactions on my question if i understood the teleemg right show me no openess but censur and no willing to know what is right. It is ridiculous if i know i have to wait 3 months to get hiv-tested and doing it after 4 weeks.So i want to know when to do my emg to be secured. If this is from the beginning of twitches GREAT i can be reassured but if it is after 3 months i want to know. Lies do not help me at all!!!
 
thanks for your rational answer! You know i have this burden too and i just try to be rational. I am a Journalist who maybe always needs to know the truth. It makes me upset when people hold their hands on their eyes because they just want to see what they want instead of what is there.
 
maybe nice guy you would better understand what the teleemg-site says....there are also answers on teleemg.comsaying that with fascics he sees something on the emg. Contadictions also there. But infortunately my english is nood good enough to understand what is written there. Would love an english speaker would go them rationally through
 
Remember that for diagnosis of mnd, the meds are not looking for fasciculations only, you may have fasciculations , they may appear on the emg or not , they may appear in another emg.but that alone don`t mean mnd. They are looking for something else in emg that shoud be present if something was going on.Then for other conditions which are not mnds I was told that may not appear in an emg at the begining but later.Otherwise, remember what of the most expert neurologists have said in some posts in this forum , specially Bart`s report, they don`t even need an emg to rule out *** but to confirm it. That means that a good clinical made by an expert neurologist is more than enaugh for them.I have had my emg 5 days after. my twitches in feet began. When I had my appointment with my expert neurologist he didn`t even do a new emg, he only made me a clinical, he said I don`t have it and ask me to come back in one year. Do you think he would risk his reputation if a new emg was nessesary?, I had a new appointment 9 months later. Gues what, he made a clinical, said everithing is fine and he didn`t order emg, although he is looking for other reasons that are causing my simpsoms. I have fasciculations in the sole and instedp of my feet, even in my toes non stop for one minute for 13,5 months now.Laureth excuse me but I have had some bad days for your post, even doubting for all my neurologist told me or I read in this forum. This morning I wake up and tried to remember all what my med told to me to have my oun reasurenes. Tomorrow I will ask for a new appointment, but please try not to disturb people here that are looking for pease of mind and trying to believe what their meds told them.
 
hi. let me start by saying that i understand many points of view but am i missing something?...i could be but from what i have read, it doesnt seem to me that laurentch was trying to be "mean" or "alarmist"... he was simply asking a question based on something he found on another site-- which by the way has seemed to be a valid site in the past. as i have said in the past, knowledge is power. he also wants the information to determine how to proceed with his own illness. we all have to be advocates for our own health.while i recognize that the information posted is frightening, we do have to realize that this emg issue does not appear to be black and white. it appears to be a gray area. it appears that in most cases, the emg is the final answer but there are some circumstances in which it is not...those appear to be the exception... but it seems that there is reason for a follow up emg... that is evidenced by the response from the doc on the teleemg site that he posted . it is also evidenced in the fact that my own doc, from johns hopkins , wants to continue to see me after a negative emg first at a 3 month interval and now at a six month interval. my local neuro suggested a six month follow up emg.Wikipedia notes in it's DEFINITION of BFS that : According to neurologist John C. Kincaid:In the absence of clinical and electromyographic findings of neurogenic disease, the diagnosis of benign fasciculations is made. I suggest that patients like this be followed for a year or longer with clinical and electromyographic exams at about 6-month intervals before one becomes secure in the diagnosis that the fasciculations are truly benign. My approach to treating fasciculations that appear to be benign is to first reassure the patient that no ominous disease seems to be present.[3] i wish this was all "certain" but what i have learned and am trying to cope with is that nothing is guaranteed. it is not fun, but it is a fact of life that i am trying to cope with. IF Laurent had gone to an ALS website and brought some information from there from a wacky person that made some random comment i think that then all of this outrage towards him would be warranted...but he didnt. he asked a question. I dont like the answer either because i like certainty but dont shoot the messenger.
 
hi. let me start by saying that i understand many points of view but am i missing something?...i could be but from what i have read, it doesnt seem to me that laurentch was trying to be "mean" or "alarmist"... he was simply asking a question based on something he found on another site-- which by the way has seemed to be a valid site in the past. as i have said in the past, knowledge is power. he also wants the information to determine how to proceed with his own illness. we all have to be advocates for our own health.while i recognize that the information posted is frightening, we do have to realize that this emg issue does not appear to be black and white. it appears to be a gray area. it appears that in most cases, the emg is the final answer but there are some circumstances in which it is not...those appear to be the exception... but it seems that there is reason for a follow up emg... that is evidenced by the response from the doc on the teleemg site that he posted . it is also evidenced in the fact that my own doc, from johns hopkins , wants to continue to see me after a negative emg first at a 3 month interval and now at a six month interval. my local neuro suggested a six month follow up emg.Wikipedia notes in it's DEFINITION of BFS that : According to neurologist John C. Kincaid:In the absence of clinical and electromyographic findings of neurogenic disease, the diagnosis of benign fasciculations is made. I suggest that patients like this be followed for a year or longer with clinical and electromyographic exams at about 6-month intervals before one becomes secure in the diagnosis that the fasciculations are truly benign. My approach to treating fasciculations that appear to be benign is to first reassure the patient that no ominous disease seems to be present.[3] i wish this was all "certain" but what i have learned and am trying to cope with is that nothing is guaranteed. it is not fun, but it is a fact of life that i am trying to cope with. IF Laurent had gone to an ALS website and brought some information from there from a wacky person that made some random comment i think that then all of this outrage towards him would be warranted...but he didnt. he asked a question. I dont like the answer either because i like certainty but dont shoot the messenger.
 
RaindogAs you know i have my Neuro tomorrow....and you twitch about the same as me, was he not bothered at all by how much you twitched??chris
 

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