Understanding Lyme Disease: Facts

[coolcat]

davey id like for some of the lyme people to come over to this chat room and explain to you that there is a couple of things that you dont under stand about lyme disease,
1)you dont allways get as rash
2)the tick is not the only vector
3)neuro dont understand lyme disease
4)testing is very light and not accurate with many false negatives
5)insurence companys dont want to treat lyme disease
6)most doctors gp dont know the signs or symptoms of lyme disease
7)lyme disease is allover the world in almost every country
all of the above is true
im not making this up
talk to some of the lyme patients on other forums and you will see,
if you dont think you fit many others on this community will fit
Im glad to say that many people on this forum have there health back and dont post and when they look at how im fighting for lyme they say no one under stands but keep fighting.. so there I am trying to help people see something that they dont...
eric

 

[SlavinBreeze]

Eric and _BoyyDavo_Man,
I read your posts. In my opinion you're both right. Maybe some kind of mental help might be helpful for me.
GP in my country don't know nothing about tick born deseases. Insurance companies never heard about it. Some Neuros know, of course, but they don't know treatment. Actaully Croatia, capital town Zagreb and specially my area is most infected place in Europe. The first case was diagnosed in 1987. The fact is that I've been bitten 3 times in 2002 (spring and summer). After first bite (embedded tick, normal size, no rush, no erythema migrans) I took azytromicin (Sumamed by PLIVA; our Croatian drug available in States).
After second bite (embedded tick, normal size, no e.m., no fever or flu like signs) I've done nothing. The third one was VERY UNUSUAL tick I've ever seen in my life (I'm living with pets all my life and I know how ticks look like in my county). It was very little one (probably "nymph" kind), I got erythema migrans (1" in circle) and flu like symptoms during next couple days. Then I done nothing. I didn't take any antibiotics or any other drugs.
My mistake. Mea culpa!
I've been verynervous and upset those days, my parents died, I left my home etc. I've forgotten about ticks. But after 2 months my calvary starting with epididymis infection (treatment with large penicilin doses), vertigo, dizziness, tinnitus. Menniere syndrom ruled out. Nothing happened during 2003. Fasciculations started last March with eyelid twitching. In my previous posts I have described tests and exams which I done last 12 months.
Last few weeks I have a lot of little twitches on my eyelids, around my lips, in and on my . Pain in my back, arm, right heel.
must

 

[coolcat]

let me know if you need the test kits from igenex sent to you in croatia,
eric

 

[SlavinBreeze]

Yesterday I visited one of my Neuros and it was quite well. Despite of all my recent problems; fasciculations wide spread, light weakness in right arm, strange sensation and numbness with light cramps in right leg, aching right heel, desperate mind; she told me I'm pretty O.K. with good neurological status and fine muscles. She recomended a lot of exercising, Omega - 3, positive thinking and avoiding Internet (meaning our Forum). I asked her do I have ALS or something else and she told me NO!
She said something very interesting. Too much vitamin E (in mega doses) are not good (in my case). Excessive bruises on skin may be caused by large doses of vit. E because it works like anticoagulant. In fact, it happened to me 2 years ago but I didn't know that was the reason. It's better to take vit. E from natural sources. Tomorrow I'm going to Slovenia. I have an appointment with LD specialist. We shall see..

 

[coolcat]

you need an igenex test, it is the only accurate test,let me know and i will send you the test kit...
eric

 

[SlavinBreeze]

My post is three years old! It is 4 years mark in 2008. I am alright now. I spent a huge sum of money trying to convince myself I am fine. O.K.; I did it.

 

[InkedMama]

Slavin, Congrats...I wish I could say I am at this 4 years. If you count the last time I went through this it was 18 months ago!!! This go around, 4 months ago in a week. I am still a bit nervous- but I am pushing through. I have the random little thumpers that hit here and there. No hotspots. Just annoying hit n runs that I cant even show any body b/c they happen so fast.. So yeah a lot of people think I am delusional. I just pray Im ok. Im having a rough day today...Very rough.

 

[blendicyyy]

Hello,I've just completed one year mark last week, still with no weakness and no atrophy. I see this in the positive and negative sides. Bad news first, this is probably staying for good and I have to learn how to live with it. Good news, if something nasty was behind all this, I should be way worse than I am now.I went to one of the best doctors in the country for neuro-motor diseases, I had EMG, nerve conduction tests and even a muscle biopsy and it's diagnosed with mild muscular dystrophy that most likely won't impair me neither kill me. So I'm learning how to live with this, and it doesn't stress me as much it did when it first happen.I have calf, feet and arm twitches every day, but not all the time. I'm getting bored to them no, I think. Life is a wonderful thing and I felt bad to have wasted some precious moments worrying too much about all this. I believe I'll be posting two , 4, 8 years marks here, but with a positive attitude and beautiful and complete life.I hope my store can be of encouragement to more people as disturbing this all can be, this is BENIGN. If your case is similar to mine (no weakness, no atrophy, only twitches) you fall in that category of SCIENTIFFICALLY PROVEN people who have this BENIGN condition. Bothersome at times, but BENIGN. This are facts, not opinions.Live your life, be happy, be useful, enjoy the day !As the turtle master said in the "Kung Fu Panda" movie, or something like that:"Yesterday is gone, tomorrow is just an idea, the today is a gift ! That why it's called the "present" !Bye !

 

[ChrisUK88]

well its been a year today since this all kicked off for me !!!! and i have some more tests next week but i am over my fear of ALS !!! i still twitch all the time in my calfs about 200 a minute but still walking, cycling etc !!Chris

 

[akohler1]

I would get on Doxycycline asap. For at least 2 months. See id there is any improvement. I live in a very high Lyme area. Not only Lyme but other tick bourne stuff. Take a look at the movie, Under our Skin...Yikes