Uncertain of Possible MS Diagnosis

Ernzo88

Active member
Well given the nature of my symptoms,it is still possible that it could be *** but i'm not as "Certain" about that as I was a little while ago. However in the last few days certain symptoms such as more fatigue,leg/foot/ankle pain,stiffness,increased buzzing and pins and needles in my right hand have caused me to become concerned with the possibilty of it being MS.Part of the concern comes from the fact that a few months ago I had a very nasty bout of ill health which included constant grogginess/dizziness,poor concentration/co-ordination and some other nasty bits and pieces. I have had a number of "Mystery" bouts of ill health/symptoms a few months apart at a time (including this one) as well as having epilepsy and as a result I am becoming concerned that it could be MS. After that last bout of ill health I had, I was given an MRI but nothing was shown and they basically discharged me with no diagnosis/reason as to why I was/had experienced these symptoms,however as I know an MRI is not conclusive and also it is possible to have a slow onset form of the disease.I would just like to know the views of others especially those that have raised the issue of MS with their doctors/neurologists.
 
I actually thought I had MS more than anything when my first symptoms started showing up. I had weird flashes when I closed my eyes, odd balance issues, jelly legs, general foggyheadedness, and pins and needles and muscle "weakness" all over my body. So I was a classic case of self diagnosed MS. I knew it before I even walked into my doctor's office.My doctor gave me a brain MRI. It came back perfectly normal.I asked my neurologist about this and he said "Well there you go. Clean MRI = no MS." I said, but wait a minute, can't MS show up on the spine? Don't I need a spinal MRI as well? He said that no, even if you have MS on the spine, you would still get secondary lesions on the brain. It wouldn't be as prominent, but there would be SOMETHING. I asked if it was possible if maybe the MRI I had (an open MRI) wasn't strong enough to pick up any secondary lesions. He looked and me and said, "I can't imagine how someone could have a clean MRI and MS, in this day and age, with the technology we have available to us now. Do you understand the kind of diagnostic tools we have at this point in time? Your MRI was clean. You don't have MS."So anyway there was the answer I got. He sent me to physical therapy for my neck (I have reversal of curvature) and told me to work on my posture. I went to PT for 8 weeks and not only is my neck stronger, I don't have any weird visual symptoms anymore. My jelly legs and foggyheadedness and balance have improved significantly as well. I still have pins and needles and achiness and I twitch though. But odds are that is probably some other thing.Hope this answer helps.
 
I really have no idea. It could be that I am eating better, it could be that I am sleeping more, it could be better posture, it could be less stress. It could be lots of things. I have no idea. I mean, who knows, maybe I had a virus at some point during that period. Maybe I was having a Crohn's flareup. Who knows? All I really care about is that it seems to have diminished if not gone away entirely. I'm really not all that interested in pursuing why it went away. I told myself I was done with thinking and obsessing about all this.
 
I really don't know what to think anymore,there was a couple of days where I was not as bad but over the last couple of days the pain,tingling,buzzing,ache,stiffness etc in my limbs (More limbs than before) has come back even worse than it was before when I mentioned that I was going up to 3-4 days at a time without moving,washing,dressing etc due to not feeling up to it.Given the constant bouts of ill health I have had on and off over the last few years it is concerning me and confusing the issue as who knows whether its something new or something old, something bad or something benign. The fact that i am having to wait to late November for my neuro appointment means that not only am I going to have to put up with these symptoms,which could get worse if the last couple of days is anything to go by,but also that i am going to be worrying all the while. Also I am seeing the same neurologist who saw me for that last bout of ill health who did the scan and then just dismissed me with no diagnosis or anything. I am hoping that because I am back in a relatively short space of time she may try a bit harder to get to the root of the problem this time.Even whilst I have been typing this my symtpoms have increased with more buzzing/tingling and also some tender points on my right leg.Worried does not even come close to how i'm feeling! :(
 

Users who are viewing this thread

Back
Top