Two Years with Fascics: ALS?

Drewbacca

Well-known member
I've been having fascics for 2 years now -- pretty much all over my body, but starting in the calves and feet. No real weakness, though I haven't been exercising as much so have probably lost some muscle mass, but can still exercise pretty vigorously. A year into this, one ALS specialist at a major hospital told me, after an emg and exam, basically I was fine, and this did not look like ALS to him. That was one year ago. But just last month, I went in for another visit with a different neuromuscular specialist, just a yearly neuro check-up, and he noticed a reflex called a "jaw jerk", along with generally brisk reflexes. He says there's still only a very small chance that this is indicative of a disease, but he wants to schedule an MRI. And so the door has opened to all the anxiety, the worries, the fears, the insomnia that I thought I'd got rid of about a year ago. Question: has anybody else had experience on this subject of profuse fascics, reflexes and "jaw jerks"? I'd be happy to hear your input if you have. Thanks.
spthomas
 
One can very seriously question the call on "jaw jerk" if you've had fasics. for 2 years with normal EMG after a year. The question is : Was he able to get this repeatedly - if not, it is not anything to be concerned. Besides, it may have been a very subject interpretation of the Neuro (was it pronounced or mild ?)
Once again, it does not seem that there is to be concerned about. Brisk reflexes are normal (not pathological - note the difference).
 
Maybe the other dr. noted that also but felt it was normal, not indicative of any disease. ?..maybe?.. This dr. I am sure like all, has to cover his/her own tush if they notice anything. The mri is just double insurance, something to back him up that he really believes it is nothing but needs to check for insurance sake.

Try not to worry, this long into it, you would have already known of something sinister, I'm sure. :)
 

Users who are viewing this thread

Back
Top