I've been having fascics for 2 years now -- pretty much all over my body, but starting in the calves and feet. No real weakness, though I haven't been exercising as much so have probably lost some muscle mass, but can still exercise pretty vigorously. A year into this, one ALS specialist at a major hospital told me, after an emg and exam, basically I was fine, and this did not look like ALS to him. That was one year ago. But just last month, I went in for another visit with a different neuromuscular specialist, just a yearly neuro check-up, and he noticed a reflex called a "jaw jerk", along with generally brisk reflexes. He says there's still only a very small chance that this is indicative of a disease, but he wants to schedule an MRI. And so the door has opened to all the anxiety, the worries, the fears, the insomnia that I thought I'd got rid of about a year ago. Question: has anybody else had experience on this subject of profuse fascics, reflexes and "jaw jerks"? I'd be happy to hear your input if you have. Thanks.
spthomas
spthomas