Two Years of Twitching: Update

[fluffymeow]

Hello,I have not been here for a while, however I thought it is worth to check-in and update the situation. News is both good and bad- now I am convinced that I do not have you-know-what (due to the fact that after two years of twitching I can still do … everything the same as before). Bad is that my symptoms got worse and worse over the past time. First I started to twitch in my feet, than it were calves (disco-dancing) and now it is virtually my whole body with emphasis on my legs. Anytime I strengthen my muscle or do some physical work I twitch as hell- and it is in all muscles that were used. My muscles are numb (especially in the morning) and I really hate it. I tried magnesium, calcium, zinc (at least 7 kinds of different pharm companies), Gatorade, Powerade, Isostar, cutting down on coffee, cutting down on alcohol, cutting down on stress (ok. this one did not work ). I also tried some anti-depressants. All of mentioned with zero or minor effect. Anyway, if someone finds the cure for this thing I will be more than happy to spend my lifetime savings to buy it . I know it is not bad and there are thousands of other worse things that could have happened to me, however I really really hate BFS and cannot make friend with it, which is not good as I think we are to be together for a very long time………Take careM

 

[sparkrlock]

Hey!Wow you sound just like me. But my Neuros said "Sean there is no treatment or medication you can take that will make these symptoms better, you can take medicines that dull the symptoms but will make you tired or feel strange, but NOTHING will help". I never beleived them. But now I do. The only thing that helps is getting out and trying to avoid focusing on the symptoms. Good to hear from you and I would love to get rid of this. The best way I can describe it to anyone that knows me is "I dont feel like Sean anymore". But thats good for me, I can push forward and hope that one day its better!Sean B.

 

[cindyandco]

Sean: I totally agree with you. I don't feel like me anymore. But, I am trying to get accustomed to this "new" me. I can deal with the twitching and buzzing, etc. as long as I know that it is benign. If I can ever get to the point where I don't question that I will be fine. At every step of life there are "new" things to cope with. If you don't believe me, have a talk with any woman experiencing the joys of menopause. But, I know menopause will pass and I am not going to die from it. I have not gotten to where I am really solid with this other, but I keep moving forward. Cindy