CautiousExplorer
Well-known member
It has been 2 months now since the twitching started. Im getting the results of the MRI scan this week.I must say however, that i've started to experience more symptoms. I have no idea if they are somehow related, but here goes nothing :* Amount of twitches slightly went down.. but i guess the 'phantom' pains replaced them, which i also get all over my body, except on my face. I also get some pains in my ribs / back , like the small muscles between them spasm around and it feels like a rubber band is around my torso, which makes breathing feel 3 times as heavy and it sometimes causes me to hyperventilate. My muscles feel weak after i've used them for a while, especially my right foot when driving. Yes, i still have all my strenght when i force myself to, but it just feels weak. The weak feeling confuses me tho; one minute i can explain it as a feeling that my leg is about to cramp up, yet a few minutes later i can describe it as a overused weak feeling like there is some block of steel in my shoe that causes my foot to drain energy. I hate the exercise intolerance 
*Headaches.. i tend to have allot of them. Sometimes with nausea and pains in / around my eyes. *Fatigue; Some days i sleep very lightly and i wake up 2 times a hour. Some days i can sleep for more then 10 hours and i still wake up feeling exhausted. Sometimes i feel good at the start of the day, but after about 5 hours i start to feel tired again.. like most people experience at a specific time at their work after a boring day. This is more annoying than the twitches and phantom pains. I used to have this during my puberty.. i thought it was part of growing up at that time. Same with growing pains.. but now it is back. *concentration problems; Sometimes in the middle of a conversation, i start to stare into the nothingness and i miss half of what being told. Or im not able to process all the information they are giving to me and i just respond 'yes' to what they say 
. I also experience this while driving in my car during work and i have to take a small break with lots of coffee to keep myself pepped. One of the annoying things about this is writing on some message boards; i tend to write some lines 2- 3 times and i notice it AFTER i posted it 
*irritable bowel syndrome; Never had this before.. it usually feels like my stomach is going insane and its making allot of noise. Shortly after, there is usually an urgency to go to the toilet. This mostly occurs after eating. I used to go to the toilet about 2times a week, now i have to take a rush on daily basis. Note that i've never had this before in my short life 
Im a little scared about the MRI results. What happens if they dont find anything? i fear that my neurologist wont take me serious after a clean scan ( and if the blood test comes out clean also; getting tested for lyme ). Should i just write down these symptoms and talk about them? I no longer care about what i might have ( well, its most definatly not ALS since that has nothing to do with 'pains' , as im told ).. as long as im not going to get diagnosed with a somatoform disorder ( e.g its all in your head )
*Headaches.. i tend to have allot of them. Sometimes with nausea and pains in / around my eyes. *Fatigue; Some days i sleep very lightly and i wake up 2 times a hour. Some days i can sleep for more then 10 hours and i still wake up feeling exhausted. Sometimes i feel good at the start of the day, but after about 5 hours i start to feel tired again.. like most people experience at a specific time at their work after a boring day. This is more annoying than the twitches and phantom pains. I used to have this during my puberty.. i thought it was part of growing up at that time. Same with growing pains.. but now it is back. *concentration problems; Sometimes in the middle of a conversation, i start to stare into the nothingness and i miss half of what being told. Or im not able to process all the information they are giving to me and i just respond 'yes' to what they say . I also experience this while driving in my car during work and i have to take a small break with lots of coffee to keep myself pepped. One of the annoying things about this is writing on some message boards; i tend to write some lines 2- 3 times and i notice it AFTER i posted it *irritable bowel syndrome; Never had this before.. it usually feels like my stomach is going insane and its making allot of noise. Shortly after, there is usually an urgency to go to the toilet. This mostly occurs after eating. I used to go to the toilet about 2times a week, now i have to take a rush on daily basis. Note that i've never had this before in my short life Im a little scared about the MRI results. What happens if they dont find anything? i fear that my neurologist wont take me serious after a clean scan ( and if the blood test comes out clean also; getting tested for lyme ). Should i just write down these symptoms and talk about them? I no longer care about what i might have ( well, its most definatly not ALS since that has nothing to do with 'pains' , as im told ).. as long as im not going to get diagnosed with a somatoform disorder ( e.g its all in your head )