Hi everyone I hadnt written in a while. 2 years ago I started with twitching on and off, went to doctor got tested and diagnosed with BFS. I had my anxiety calm down until recently that I got constant tongue twitches thatyou can see in the video. Does anyones twitches look similar? Can thus be something scary! Im going crazy! You can see the twitch on the left side.
Twitching Worries: BFS Diagnosis
- Thread starter RedVelvet
- Start date
JuanitaPeralta
Well-known member
I can relate to some of those, not all. Have you had EMG there?
RhinoWebster
Well-known member
Hello First things first -1) you are pretty 
2) If you have been a twitcher for the last 2 years - and no speech problems - I think you are fine.I get those from time to time. If you are that worried - just go see a neuro to calm your fears as best as they can.
2) If you have been a twitcher for the last 2 years - and no speech problems - I think you are fine.I get those from time to time. If you are that worried - just go see a neuro to calm your fears as best as they can.JuanitaPeralta
Well-known member
I second that motion. I've had the left-your right one. Do you have C3-C4 issues at all? Hypoglossal passes by there about 5mm proximal.
DaveBRzDavesumo
Member
You have absolutely nothing to worry about. I have had that and went running back to my neurologist. The tongue is like any other muscle and nothing to worry about. If you can push your tongue against each cheek and move it up and down your fine. Please don't let this tongue twitch consume you for a month like mine did
JuanitaPeralta
Well-known member
There is no difference between a "BFS" and "ALS" twitch. Weakness is the marker. Even then, weakness can be caused by other things, not just "ALS".
I had very disconcerting tongue twitches a while back, on the side like you posted and also on what felt like the tip. Actually I have had them several times in my life, but most recently I would say about 9 or so months ago. I know that they were likely directly related to a vicious cycle: I was on too much caffeine, because I was sleepy. But when I was too sleepy and exhausted, my twitching all over increased. I didnt feel them constantly (so not a tongue hotspot) and every time I tried to videotape or show someone they went away. At any rate, nothing to worry about. It is all BFS and you're not alone!
Thank you all so much! I hate getting these hot spots because I start with my self testing and second guessing my self. I havent had any twitches on my tongue today but I have still been staring at the mirror all day, looking at my tongue in every position, looking at my soft palate and its simitry, reading out loud to make sure I dont stumble on words and drinking water quickly to make sure I can! I have pressed my tongue against my cheek so many times it hurts! Agh!
I hope youre better today and this weekend, and it goes without saying because you're not new to this and you know better, but STOP SELF TESTING!!!! It will do you no good! A twitch is a twitch is a twitch, and the tongue is a muscle so it will twitch. There is no significance at all with respect to location when it comes to BFS. I have had hotspots inside my eardrum (yep those really take the cake) and I still after a month have a hotspot on my toe and sole of my left foot, and I have had (and will continue to have) twitches on every body part in between. 
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)I don't think you should worry Twitchy...I had similar twitches a few years ago when all started. As i understand those kind of twitches in the side of the tongue are totally innocent.Im sure you are also experiencing a tingly feeling.Try to get some liquid magnesium and stop stretching your tongue!In a few months time you will totally forget about it