Twitching Throughout the Body - ALS?

[BubbleMafia]

My question is simple, if I have twitching from the top of my scalp to my pinky toe, through out my face, tongue, arms, legs, back, stomach....virtually every square inch of my body....is that a clear indicator that I do NOT have ALS? From what I understand, in the other disease it is localized and spreads out from there, not a twitch in your cheek then your calf in the same minute. I am trying to convince myself that if someone with ALS had body wide twitching, there disease would probobly be VERY far into progression and there would be MANY severe in your face symptoms indicating ALS. I am typing this, and reading it, but am I believeing it? Im not so sure, I need a little help with that....

 

[JohnnyRocket]

Correct, rapid onset of body wide twitching is not how ALS progresses. You should definitely believe it!

 

[marycaliforniaprayer]

Mellabella, did you start any new medications prior to your twitching? Just curious, that's what happened to me, and my doc didn't even ask

 

[BubbleMafia]

No new medications. Started when I was pregnant and I wasnt taking a thing then just pre natal vitamins and it was localized to my hand. Then it stopped for 8 months. Now its been back for a year a half, the last 6 months primarily in my face. Now, I take klonopin which is supposed to be helping...but isnt...

 

[marycaliforniaprayer]

I HATE facial twitching. It still freaks me out. Anything with my head/face or neck, I HATE.

 

[PuppyFurryFunTimes]

Yeah I hate twitching.... PERIOD!! Ah!!! From what I've read, it's more localized if it IS the first noticeable.. I read the article on Steve Gleason, it was quick progression, like a month later he couldn't do a pullup with one arm.