Twitching Over Multiple Body Parts

[LisaQ.]

My twitching in the beginning was always in one spot, one side of the body, then would stay there a few months and move to the opposite side.

I had it under my rib cage (I guess it was my diaphragm) at first, left side, then right side, then started with the shoulder on the right, then left, each lasting for months at a time.

Eventually, the twitching became more wide spread, but I still do get a few days at a time where it will localize in a certain spot.

I actually think it really started for me years ago when I had a twitch in my (ahem) that lasted a good month or so, but I wasn't sure what it was and even asked the gyn and she didn't know either, lol.

 

[CandyM314]

Good morning everyone

I have just read all your encouraging messages and can't thank you enough for the support

I sometimes think the Internet is a modern day curse (I would never have connected twitching with ALS had i not googled!) but having found this brilliant website have to reconsider

I feel much more relaxed about the whole thing, so much so that the kids I teach will have a nearly normal teacher today! Or at least one who doesn't:

1. Have her hand permanently pasted to her shoulder (to check for twitching)
2. Walking either on tiptoes or on heels (to test for strength!)
3. Lifting great heavy objects (Ditto above)
4. Challenging all the kids to arm wrestling matches!!!

Well, at least for the first couple of hours until I notice a new worrying 'symptom'

Thanks very much and hope you all have a splendid day

Julia

 

[Diego4Life]

Hi Julia, I live in the UK too. With regard to what will happen when you see your GP again its hard to say. He may or may not refer you to a neurologist, however, if he does that does not mean that he suspects anything sinister. Some GP's simply refer more than others and many GP's do not know much about BFS in the UK. If you do see a neuro, you will get a full neurological work-up and the neuro may or may not order an EMG. Again, if he does, it still does not mean anything bad. Some neuros will always order an EMG for completeness, some will not.

With regard to time frame for a referal, you will probably have to wait a few weeks for an appointment with a neuro. Make sure you tell your GP what you are worrried about as he may be able to reassure you.

Going by your symptoms. I would say that it doesn't sound like you have anything to worry about. Have you had a recent virus?

Diego4Life

 

[zEarthyRanger]

The wait for an EMG can be quite long on the NHS; you can of course speed it up considerably by chosing to pay.

My neuro (I'd asked to be referred so had to pay) suggested I get the EMG done on the NHS, because he did not feel it was necessary. When I heard the wait would be months not weeks, I asked to also have that done privately. Was much quicker.

 

[EyeoftheWild]

Yes, I would have to agree with Saint 12Drifter12's assessment of the situation. You do not have Benign fasciculation Syndrome but rather Fasciculators Synonym which acts just the same even though it has a different name. I would be careful CandyM314 because there is nothing quite so erotic, for a male, as seeing movement under a woman's blouse, particularly the shoulder area. Very appealing!! This could result in your being tackled by a crazed fellow teacher or a horny teen in the hallway, pulled into the janitor's closet and then ravished. The only remedy for this is to wear your winter parka in class until the twitching in your shoulder diminishes enough, so as not to cause a riot. Even someone as stoic as myself, and well familiar with twitching, might get adled. If you do eventually come down with BFS then you will have to take extra ordinary measures to hide your twitching, because you will be seen as a love machine by all.

Cheers,
Basso
BTW. I'm groovin' on the UK "love in."

BBTW: You are fine CandyM314, I look to further reports about your shoulder.

 

[AlexAls23]

Concerning how long after having some peace of mind i'd say:

Bulbar onset: 12-18 Months
Limb onset: 18-24 Months

Of course i'm no doctor. , however a "pretend-to-be-a-doctor-person"

Some may say that 6 months are also good, but what i mean is that with the ranges mentioned above its more or less definite benign.