Twitching in Upper Back

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BartOne

Well-known member
Hi,For about 2 weeks now I'm having a fine localized twitch in my upper back near my left shoulderblade. I can't see it and only feel it when I'm sitting against a chair or in bed. However over the last couple of days the twitching around my shoulderblade and the rest of my back has increased dramatically. Every other second I can feel a twitch somewhere in my back. I'm also having this kind of buzzing thing going on at the left shoulder and shoulder blade.My worry for this is even getting bigger because my left shoulder is hurting now and I seem to have less strength in it.I would like to ask some questions:1. How many back twitches do you have? At what interval? Hotspot?2. Does anyone have some buzzing in his back or shoulderblade.3. Is this amout of twitches in my back more worriesome than others?It would mean a lot if people could answer those 3 questionsThanksB1
 
Bart, honesly I don't think that anything anybody tells you helps. It's like it goes through one eye (since your reading) and out the other. I really don't even know if I should waste my time today answering b/c I am sure you will come back with something about how it's different for YOU or what-not but I will.1. Yes, If you only knew how many hotspots I have had. I had one that lasted months, and I truly mean months. I truly believe it's b/c I was so focused on just that buzz/twitch is why it never went away. I KNOW the same is for you. At what interval? who cares! That really does not matter but it was constant.2. I have an electrical shock in my shoulderblade! How is that for scary. Not just a twitch and a buzz but a shock also! 3. NO, not at all. You are focusing so hard on your little twitch. If you let this buzzing/twitch go, it will let you go. I truly can't even believe you STILL think you have ALS! I really can't! It's beyond me.
 
Bart:You are NUTS!I have had those back-twitches around my shoulderblade since marts or april. Non-stop. My GP told me, that it is benign beyond any doubt. My body have been twitching like crazy for 2 years now in all kind of ways - just like yours. If this twitching was becourse of dying muscles, I wouldnt be able to speak as it is in my tongue. I wouldnt be able to walk or run as it is in my feets and legs. I wouldn be able to move my head as it is in my neck. And I wouldnt be able to throw my kids into the air as it is in my back. It IS really that simple. Of course not for you as you are an rare exception but for the rest of us. Look at Jro, Granger, highpriority. The story is all the same. BFS in a nutshell.
 
Hi,I know ( or I hope) you always mean well but I have to say you guys are sometimes very rude. You need to remember that you also had bad days and need info and help. YEs I know I've been twitching for a long time. But my twitching has changed, my back is having CONSTANT(every second) twitches, 24/7 . As I look this up on the board , the ones that have back twitches only have them once in a while not constant like I do. Then I've got a fine localized one, and I read here on the board that fine localized are the ones that are seen in ALS, this combined with shoulder pain & weakness...don't you think you would be alarmed? I know I'm having an anxiety disorder trough this all but I also think something is really wrong.No one on this entire board has CONSTANT back twitching and buzzing, only me. I'm not talking about 24/7 leg, foot or hand twitching because this is very common but not in the back. If you would have a symptom that no one else has, wouldn't you freak out?
 
Hi MeganYOu know I saw a neuro 3 weeks ago. I was so relieved they said it was BCFS. ONE WEEK later this back twitching started- the localized fine one and now more and more back twitching. How is this possible? I was finally getting around with this and than this happens. I'm going to see my 2nd neuro at the end of the month.
 
Bart,Sorry you're having such a tough time. We all have probably felt the same way for at least a while, so know that you are not alone. I have not had symptoms like you, but many obviously have. Try the search function...you will likely find many posts theat sound similar to what you are going through. We're not doctors, all we can do is try to reassure you that others have had similar (BENIGN) symptoms. If you had an EMG and was cleared, I would suggest you try your best to relax. Freaking out will only make your symptoms worse. I am sure your upcoming appointment will be just fine. Best wishes...Oh yeah, here is a quote from something you wrote following your initial appointment:"1)Where, when and how the fasciculations appear: doesn't matter, not important2)What about little ones, fine ones. I heard they are more due to ALS: Huhm, you know more than me, no, thats nonsense."
 
Bart,I know you are scared. I do understand that. I have been there, believe me I have been in tears. You need some anxiety medicine first off. Second, if your doctors aren't concerned, then you shouldn't be either. If you just passed a clincial 3 weeks ago and have been twitching for 22 months, YOU DO NOT HAVE ALS. Only you can convince yourself of that. Nobody on this board can do that for you. You are going to fine once you get that out of your head.
 
Go back and read your post that I quoted...it's a classic. Plus, who are you going to believe? A neuro with years and years of experience or Dr. Google? The anxiety you are having is going to much more harmful to you in the long run than some benign twitches. I didn't get more than 3-4 hours of sleep for a good two or three weeks when I was at peak anxiety. When I went to my neuro appointment my blood pressure was 150/90 or something like that...it is usually 120/80. I wasn't eating, my mind was racing, I'm sure I was making the people around me miserable as well...and for what? I'm never getting those days back my man, and you'll never get these past few days back either. Any way you slice it, every day we live we're one day closer to the end you know? I don't know how old you are, nor do I know you're overall health and well-being, but I'm guessing not too old or sick to get out and enjoy your life.Get out and exercise, work your fingers to the bone in the yard or on the house, do anything but sitting around looking in a mirror waiting to see your next twitch or Googling ALS or even reading this forum for that matter. Keep your mind and body occupied. It will help with the anxiety, wear you out so maybe you can get some rest, as well as reassure you that your body is healthy and strong.
 
Bart- read your own words and let them sink in. You were just cleared by a neuro and yet you're already freaking out. Do you think the back twitch starting a week after the visit means something horrible developed in that one week? Do you think the doc completely missed the diagnosis and if you said "Hey I've also got the back twitch thing" he would've said, "Oh wait forget the diagnosis of BFCS, this is something terrible!" Logic and reason and thinking calmly about the objective facts here should relieve you of this worry. 2 years of twitching with no problem + recently cleared by a neuro = nothing is wrong with your outside of BFS. If looking at these facts and thinking rationally about this doesn't work, then you need professional help with the anxiety. Nobody is trying to be mean here or rude but given the facts of your situation and your refusal to listen to the posts people have taken the time to write to reassure you, there's nothing more people can say that will make you see the light here. I will say it one last time. This constant twitch means nothing. Its a hotspot. My nose twitched for a month almost constantly. This week its been both eyelids. Last week it was my right butt cheek (that was an odd one). You're neuro CLEARED YOU!!! He didn't miss something because your back started twitching a week later.
 
I'm sorry Bart, but unlike you I think this board has been extremely empathetic to your situation. Members get frustrated at times because it seems that you simply do not want to listen to the obvious. The fact is that we've all had hot spots in various locations around the body, some lasted days, some weeks and others months. The definition of a hot spot is exactly what you are describing - one spot which twitches constantly NON STOP. Like you, I have been twitching for 22 months. During those months I had several hotspots including my back (2/3 weeks), deltoid muscle (5 weeks), tongue (3 months!!!!), thumb (months and still going), diaphragm (2 weeks) and several other locations (I simply don't keep track anymore since I truly do not care). I've had 4 clean EMG's and so many neuro visits (7 different neuro's) that I'm embarrassed to even admit it. The last neuro I was seeing is the head of the largest ALS clinic in the country (this was in Jan/Feb). He conducted the EMG himself and said there was no need for a follow up and that this is all of a benign nature. Benign= something is going on, but it is not going to kill you.Hotspots are an integral part of this condition. Except it and learn to live with it or you will drive yourself insane.Regards,May
 
Dear Bart, I really think the board was not unfair to you. Problem is, you ask the same questions and somethimes people are tired answering the same questions again and again. I read your posts and I think you have been checked out better then anyone else on this board, besides laurent.All neuros told you you do NOT have it! Also this long time in it, means also late onset is impossible, especially you have been checked by neuro two weeks ago. Your hot spot started after the neuro visit and? It means nothing, as hot spots and bfs doesn´t care when you have visited your neuro. Here are people twitching with there eyelid and have a job interview. I mean bfs doesn´t care, in which life situation you are in the moment. I see your post in two months, it will be like "hotspot in thigh now 3 weeks going on What can I do?". It is bfs and it means here the hotspot now and next week somewhere else. Here are people having hotspots in tongue for months!Please undestand me right, we all fear the same and we all need reassurance, but there must be a time, when you and we all accept, that what we have is benign and come over the hump. I would worry about your mental problems. I read about a guy who was convinced he had a brain tumor, even he had 3 MRI´s and everyone said he is healthy. His wife was interviewed the said, he is now in a mental clinic for treatment, but it doesn´t get better and she fears that he will do suicide. The guy has strong migraine and nothing else.I do not want to scare, but show what mental disorder can cause. You are running your life and the life of the people loving you!
 
Just wanted to say.... I get back twitches... random, different places.I also have "buzzing, electrical feeling" all down my left side (this is where I have sciatica pretty bad)... but in my back too.Andrea
 
Bart, my twitching started 2 years ago in my shoulder and back. Back twitches are the same as any other twitch. I am still alive, still strong and accepting that a twitch is just a twitch. You need to try and do the same :)Linda
 
Hi Bart,I'm glad to hear that you're doing well. Because I think you are as the Neurologist(s) told you so. And not only...I do understand you're are mostly concerned about your back twitches.I do, I did, and as you know, having twitched everywhere, I can't see any reason why the back muscles should be different. Actually, I heard people people (not officially BFS sufferers)saying that their back twitches from time to time.By the way, my back is quite strong indeed.And what about my hands, and my legs in the last few days...I'm not sure if anxiety is the problem or rather the consequence of some kind excitability issue (either direct or indirect). What I know that the has been a day (actually an evening) when, all of a sudden, the problem appears to have started.I saw, as you did, as we did, several neuros and rhematologists. Clear EMGs. Reassurance given.I can just suggest you to do what I do as it works for me: a good traning session or outdoors activities. Twitches are still there, but sometime you may even totally forget about them.
 
Hi Linda & Edado,I wasn't going to post anything here anymore.I can't say I'm doing fine: near my left shoulderblade I've got continuous twitching - fine tickling twitches in a 8 cm area (not just one muscle anymore) non stop. Since a couple of weeks my left shoulder is getting weaker and it's in pain that goes until my arm. My gp send my for an echo, without result. He talked with my neuro and they now both agreed there is something more going on. My gp did mention MND, he says he has no clue anymore and everything is checked and that I have to do an EMG again because they are worried about the local constant twitching and the weakness. This is all I'm going to say about it right now because people called me a hypocondriac and so here . I really don't need this anymore because I got the message that indeed something is wrong.
 
Hi Bart,First of all, there is nothing wrong in being hypocondriac. Secondly, you cannot and I cannot "produce" my twitches intentionally.Said that, I am very confident that everything will turn out to be ok as far as further investigations will go.It can not be otherwise.All the best again and keep posting. I'm sure many people like and benefit your posts.
 

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