Hey Folks,first I want to say, this is a great forum and it's doing a great service for people which are very concerned about their symptoms... including me.My Englisch ain't top notch, so I apologize for that at the start...So here's my story:I'm 22, nearly 23 years old and am twitching for over a year now. I twitch literally everywhere, but I'm lately more concerned about my feet and my hands...My middle Finger will twitch, my index finger too when i hold a cigarette between both fingers or when using the mouse. Or when I just lay my arm on the table edge, so the edge is pushing a little bit into my skin, this will cause my Hand/Fingers to twitch. Also have the feeling of getting clumsy.The toes of my right foot, constantly move inside my shoe and i have kind of the "need" to squeeze my toes or to move them. That makes the twitching more "comfortable" for me. No Pain.I saw my Neurologist two times, the first time i got an EMG with a needle (everything was fine). The Second time she just examined me again, it was fine again... she said i'm likeley to have BFS. But my problem is, i just don't feel this way... i have the feeling that my feets show atrophies, but you know the thoughts. I'm thinking that the topside of my feet is getting real thin, but i didn't really looked at my feet in the past, so i can't tell if it was like that forever. I mean nobody of us did that until this stupid symptoms appeared, right ?I just can't put my mind at ease, becauce of the symptoms being so much present and always remember me that something ain't "right".Maybe ALS, maybe a neuromuscular disease ? That are my thoughts for over a year now...Do some of you know these symptoms of twitching hand when holding your fingers in a certain position ? Or the twicthing feet, the need to squeeze your toes ? Laying your arm or hand on the tabledge, and experiencing twitching when hart things push in your underarm ?And i feel my pulse pretty intense in my fingers, depends if i lay on them or touch something, i feel it the most when i'm laying in bed, it kind of feels like a pulsating twitch, but it's in the rhythm with my heartbeats... does anyone of you experienced something like this with BFS ?Am I worrying over nothing ? This really sucks bad...Best regards, Rig
Twitching for Over a Year: Concerned
- Thread starter oberto88
- Start date
Hi Rig,as for the atrophy... consider that at 'normal' conditions it never happens at working muscle. Muscle must be not used to be atrophied. This can happen: a) when you have palsy (whether spastic or so called weak palsy, no matter) - i/e/, after stroke, in persons with so called child palsy, after polyo, meningitis, etc., and in case of paralysing diseases like ALS or MS. but palsy or paralysis is a must; b) when your muscle is not acting due to being in cast - after each fracture person has to workout his or her muscles, and the longer is cast period, the more evident is the muscle weakening and atrophy; c) when you are really really old and lost most of mobility just due to overall agening and weakness.in 23 years old (young!) gentlemen it could be 99, (% imagination and health obsession. As far as you neuro clinical exam is OK - no thouths about atrophy should be allowed for the sake of your soul health.It is hard to believe you are generally OK when your body is full of twitches and cramps, joint are aching as in rheumatoid arthritis, throat is tight as a bottle neck, bowels are cramping and there is a bloody fog in the mind...But we are really having only syndrome (combination of symptomes), not the deadly disease.believe me, I am 42 yo lady with over 35 years of GAD (general anxiety disoirder) and almost 1 year in BFS. you eould be just fine. You might have hig loads in your young life (studies or just a start of career), so this is normal body reaction...
Thanks for you responses... !I have the symptoms since i had an Infection with EHEC, don't know if you guys heard of it, was a small epidemic in Emilyomousey last year. After that my symptoms started. It was a intestine bacteria infection. Some people died because of it, but mostly it was just a unpleasent but harmless disease for people, including me.I just keep telling this BFS stuff everyday to myself, but when a new symptom occurs, i freak out. It's kind of a cycle... Thanks Guys !Keep on posting, if you feel the need.
but if your BFS is a kind of post viral reaction - which is quite common for BFS - then it would slowly slowly improve (usually it is so), but it may take years.yes, I am too freaked every time I have new cramps, new twitches etc. but a day comes, and a next, and I am still able to use my hands, eat my meals, take my pills and do my stretches...that is BFS - always new, scary and generally more or less harmless 
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))Thank you so much for the responses !!Ain't nobody else here to share his experiences ?I noticed, and I'm just trying to be open is, when I smoke some weed, my symptoms get much worse, despite that my hands feel like "blocked" or "palsy" when I use the keyboard or the mouse... like some nerves were under pressure... it is quiet uncomfortable.What if my neuro missed some things ?Despite the weed smoking, anyone else has the same experiences with the hand ?
Hi RigI do not use weed 
)) but I can tell you that using it you may have all range of effects - from increased twitches to spasms etc., because no one can fully and completely in details forsee what would be a result of activating and inhibiting action balance (it depends on the dose, quality of alkaloids, your own metabolism, other medications taken in and even, I think, from the time of the day).I can tell you that inconvenience when typing is quite typical reaction in BFS. I had it in the beginning of my own BFS and sometimes feel it even now, close to 1 year anniversary. the hands and fingers in this case feel unusually 'weaker', like they are not so flexy as before, clumsy. or not easily moved, strained etc.I can assure you that this is ususally transient. As soon as you still can pick up small items, hold a pen or move scissors, you are OK.Thinking that your doctor was halfblind during your visit is not very productive. Of course we all know the stories about doctor not being able to notice essential symptomes... In that case you might seek for second opinion but overall advice is not to exceed the number of three experts 9otherwise your bills would be extrememly high) ))
)) but I can tell you that using it you may have all range of effects - from increased twitches to spasms etc., because no one can fully and completely in details forsee what would be a result of activating and inhibiting action balance (it depends on the dose, quality of alkaloids, your own metabolism, other medications taken in and even, I think, from the time of the day).I can tell you that inconvenience when typing is quite typical reaction in BFS. I had it in the beginning of my own BFS and sometimes feel it even now, close to 1 year anniversary. the hands and fingers in this case feel unusually 'weaker', like they are not so flexy as before, clumsy. or not easily moved, strained etc.I can assure you that this is ususally transient. As soon as you still can pick up small items, hold a pen or move scissors, you are OK.Thinking that your doctor was halfblind during your visit is not very productive. Of course we all know the stories about doctor not being able to notice essential symptomes... In that case you might seek for second opinion but overall advice is not to exceed the number of three experts 9otherwise your bills would be extrememly high) ))Thanks for your answer... so you are saying that you experienced the same feeling, like your fingers would twitch, like a pressure feeling or it fills like they are getting stiff, so you position your hand differently, becauce it feels very uncomfortable ?BFS is really crazy... I hope that i have a benign condition...
my fingers itself twitch very seldom, I rather have that uncomfortalbe positioning feeling (even to the extent of straining pain in the palm joints), feeling of stiff and heavy fingers, sometimes I even was dropping forks and small objects...I had noted later that in fact my hands were essentially cold while experiencing that. And using my little doggie or long sleeved robes to warm the hands up was quite helpful. So when I have again that unpleasant feeling, first of all I check if my hands are still warm. Usually they are not.People with unstable nervous system can easily have circulatory issues in their limbs - cold, wet, shaky hands are typical for feared people, and we are feared too!By the way I am not sure if using weed does not affect your limbs ciruclation plus to cpecific central effects - so it made add simple hypoxia to your poor hand muscles.
I aslo can add that many of BFS sufferers have unusally strong cold and heat reactions (but cold intolerance is much more prominent, onmy point of view). I myself also have Ellers syndrome 9presented as joint hypermobility), and among other 'nice' features it includes specific winter muscle weakness. Last winter I was frightened almost to knockout when I took the cold shovel with a bare hand to move some snow from the garden road and find I can not properly keep a hold!!!! I also experienced some troubles with keys - when taking them by bare hand in winter And it was not 'normal' cold stiffness but a clear feeling of weakness - fortunately only feeling, not a real one.
And it was not 'normal' cold stiffness but a clear feeling of weakness - fortunately only feeling, not a real one.I started feeling that twitch on the tip of my tongue as well a week ago. I also see them when I looked in the mirror. It looks like a tiny pulse. It made me freak out and starting to think things like my tongue seem asymmetric, i can't pronounce words correctly, have different sensations, it feels heavy/tired.....etc. haven't felt it since. Bothering me a little bit but not over the top concerned...