Twitching for 1 Year - Update

[DonFrancisco]

Hi everyone,I've been twitching all over for about a year. Started in my calves and has progressed to everywhere (but still mostly in my calves). Have never developed any weakness in my calves and a normal EMG about 10 months ago. Was doing well dealing with the symptoms until about a month ago when I thought I noticed some "atrophy" in my right forearm. Pretty sure it's not real atrophy (no one else seems to think my arms look any different and the muscle definition is pretty equal between my arms) but of course now my obsession with ALS has come back. And I now feel like my right arm (forearm, bicep, shoulder) feels "heavy" all the time. Along with this my twitching has intensified all over my body (as has my anxiety). I'm still able to do things with my right arm (lift a suitcase, hold my 18 month old, do 35 lb. bicep curls) but I feel like things feel heavier in my right arm than my left. Just wondering if anyone else with BFS feels this sort of heaviness, "fatigue" or aching. Thanks.

 

[ShannyB63]

Hi mb, if u can lift your baby as well as 35 lb bichep curls u don't have weakness...I think u said it yourself in your post, u thought u noticed atrophy, got anxious about it, twitched more, vicious circle my friend.....my arms feel achy and sore too....everyday..work on your anxiety and I think u will be fine.....best wishes Shannon

 

[christinasgirl123]

FIRST weakness THEN athropy. If it was athropy, no way of lifting anything.

 

[bfhopeful2]

I went through all the same things. And lifting 35lbs doesn't mean much. You could have lifted 40 before. The truth is you are not symetric. No one is. You will continue to see things like your forearm by accident, or if you look for them. The proof is the time that's passed. 10 months plus into it, you would know! It would be much much worse then preceived weakness or imaginary atrophy. I do get where you are at though. I have been there and it's scary as hell. But you will get through, I promise. You are ok. Enjoy that baby!

 

[Natedotcom]

I'm with PrayMantus... If it's been 10 months of twitching then I wouldn't even consider ALS. I remember having my twitches for a couple of years before I even paid them much attention - I was so thankful to find out that if it WAS ALS I would have *beep* well known by then! It's easy when anxiety starts to take over to notice things that you wouldn't usually pay any attention to (different in arm sizes, etc.). In fact, just the other week my chiropractor noticed I had a lump on the back of my head! I've always had this lump (it's just a normal bone called the external occipital protrudence) but just her commenting on it made me start to worry and think "Maybe it isn't normal... maybe I should get it checked out"... Of course, a few hours later once my anxiety had lowered I realized just how silly it was for me to even go there. Problem is, in the moment, it seemed like a totally rational fear! *beep* that anxiety!