hi @ll
) first of all...my name is sarah and i'm from austria. my mother tongue is Emilyomouse and my english is not the best...i understand nearly everything but when it#s my turn to talk..i tend to make many mistakes....so sorry first of all for may english
i am 28 years old, female.in december 2007 my left eyelid started to twitch...it was quite sinewy...but i thought ok...twitching eyelid...that's a common thing...stress etc....i know that many people have a twitching eyelid...so i wasn't scared.then i herad strange noises in my right ear...i think that something in my ear was twitching inside...like spasms or so....but again i didn't worry a lot.but then 2 months ago it started to twitch everywhere in my body...shoulders, legs, thumbs, fingers, throat, tongue etc....these twitches only occured when i was at rest....when sitting or lying on the couch and especially in bed....it kept me from falling asleep....often i wasn't able to fall asleep for 4 hours....and when i woke up in the morning it started all again. i was scared of als and other bad illnesses....i went to the neurologist...he did eeg, and reflextest and told me to observe the twitches...and if it would get worse i should come again....about 4 weeks later....it really got worse....i went to him again....he did some emg (the one where he puts a needle inside the muscle)....and everything was ok.i had a brain mri in march this year (because i had the second hearing loss in my life)....everything was ok....and the twitch in my whole body startded in april...so he said that i don't need a new mri right now.well but now i have other symptoms...which i told him,...but he didn't take me too serious...he said that i observe myself too much and i am healthy....but the new symptoms are really driving me crazy....no my chin is twitching...sometimes my lips are twitching....that is soooooooooo embarrasing that i try to hide my chin by holding it with my hands....it's not always...but sometimes....most of the time when i'm working....i am afraid of the chin twitch....it looks so stupid........and: my head makes jerky movements....i think nobody has notices this....but it's such a bad feeling :crying:
it's like as if you don't have the control over your body....maybe it's a tic?? but i never suffered from tics as a child and in the internet you can't find much information about tics....i worry that it will get worse....or that this are symptoms of parkinson, chorea huntington or kreuzfeld jakob or something else
:crying:
has anyone also twitches in the chin??? or jerky movements with the head? i am quite sad at the moment.... i am sooooo afraid of being seriously ill.sometimes i also have the feeling of trembling fingers....on both sides....maybe it#s really parkinson :crying: it's so stupid that there is no examination which declares you that you don't suffer from parkinson....they can only tell you by the symptoms.sorry for the long text....i hope that it doesn't keep you folks from writing your thoughts and experiences about it!!nice greetings, sarah







