Twitching Everywhere: My Story

sophia916

New member
My symptoms started Sept 08, actually started during my vacation! It started with a constant twitching right in the bend of my right elbow. I shook it off as nothing because who hasnt had a nagging twitch every so often?? Well I get home from florida, and my whole body was having these little twitches in random places,...my back, my calf, my face, my chest...you get the point. Of course like many of us, I searched the internet and found (drum roll) a whole slew of threads with ALS as the topic. What do I do? I freaked out!! Im talking crying, panicking, cant sleep, cant eat, could barely function. I went to see a neuro and he did an EMG and a NCV, says it was normal. MS was ruled out, lyme, ANA, ACA.....all bloodwork you could think of- Normal. Ok, I figured that I would see my internist (who has known me for 20 years) and he feels strongly that its all due to "nerves" and anxiety. He suggested some meds to keep me calm but being that Im very holistic, I denied them. I dont believe that medication is the way to make you feel normal,...your just masking to problem, not fixing it. :cool: Well a few more months down the road, still having the twitching, some days hardly any, and some days where its making me a nervous wreck!! :crying: A new symptoms has accured though. I get very dull muscle pain, No weakness at all. I go to the gym, take my vitamins and get plenty of rest (I try at least)........then I have this feeling that there is something in my throat..."a lump in throat" sensation. I can swallow perfect, speak perfect..........it feels like its right behind my nose. Sometimes I think there is a tightening feeling going on there. I visited the ENT and he stuck a camera down my nose and found......Nothing. Feels that it is acid reflux...........then again he is a dinosaur and didnt seem to sure of himself. I asked him if he felt strongly it was acid reflux and he said by my description of the symtoms I was giving him, he felt it was that. He gave me Acidphex.........which didnt do anything for me. I went back again to see my neuro and he did another EMG/NCV - Normal. Gave me script for Lexapro and said it was due to anxiety. What Anxiety!? I was on VACATION when this all started!!! :rolleyes: Well its been 7 months since my first symtoms.....like I said some days twitching, some days not as much. Some days I get that weird lump feeling in my throat and some days nothing...........could it be anxiety without me knowing? I take ALOT of vitamins! Fish Oil, Calcium/Magnesium, multivitamin. I drink tons of water.......Im feel great. Havent lost any strength....been working out 3 times a week. Maybe it is anxiety......I do work in the medical field so I guess that would make me ten times more nervous than the average person because I know a little more and understand more. SIGHWhat are your thoughts?
 
I'm going to go with anxiety on this one. You can't swing a dead cat around here without hitting someone who has experienced the old "lump in the throat." I think I'm having it today, as a matter of fact. I've been twitching for 3 months. Getting less anxious, but the fear is always with me. I notice on days that I experience a small panic or stressful event--bam globus sensation. Being in the medical field gives you a lot of knowledge and it can also be a stressful job. Your symptoms sound similar to many here.Becky
 
You have no idea how refreshing (yes refreshing) to hear that someone else has had the same symptoms as you. For me, the lump in the throat feeling comes and goes. And yes being in the field that Im in, its very stressful and who knows maybe it is anxiety. What really bothers me is that it started while I was on vacation lol I was so relaxed and having a great time with my boyfriend. I dont know what brought this on and to hear from neuros that its "benign" and that they dont know what causes it is just unacceptable. Will I be a basket-case and run to doctors for the rest of my life? - Absolutely NOT. But as many of you on here,...ALS is still a fear in the back of our heads. SIGH. There was link on youtube.com showing off his fasciculations,...the clip next to it?....a video of a person with ALS. My heart goes out to all of those who are suffering with that disease. May there someone day (hopefully soon) there will be a cure!
 
My onset of bodywide twitching came after the beginning of a three month vacation (summer vacation since I'm a school teacher). I had no stress. I was happy as a clam. I was also told that everything I was experiencing was anxiety but later learned from testing that something physiological was and is going on. No neuro has told me I have ALS and they have actually said they are 99.9% sure I don't but clearly there are things that can happen within one's body (in my case probably autoimmune) that can cause twitching and be hard to detect. Having been on this board daily since the onset of my symptoms and having seen so many neuros, I believe that most here are not suffering from their symptoms just the anxiety over what they are. Please be grateful if you symptoms are not causing physical suffering. I wish that my only problem was anxiety over what is the cause. I have this to some degree but the physical discomfort is a bigger hurdle for me.
 
Eduardo thank you so much in responding to my post. Sept will mark 1 year that I will have this twitching on and off. I still cant help but wonder if its ALS. The whole lump in throat feeling makes me think its Bulbar. :( I did try the lexapro and had a severe reaction to it. My internist wants me to try zoloft but Im afraid to be dependent on it. Are there any natural remedies that you could recommend? If worse comes to worse, I will take the meds. This whole twitching thing stinks and is making me nuts. Anxiety by itself is a problem too. When I sit back and think of myself outside of the box,....yeah Im a pretty nervous person. I worry alot. I wish I could chill out. I hope there will be an answer to why there is this thing called BFS. As of today, hardly any twitching....weird.
 
HI there DanielleI started with identical symptoms in Sept 08 and like you became a cot case worrying about ALS. It was nice to read of someone on the other side of the workd going through exactly the same experiences at exactly the same time as me here in New Zealand - very reassuring to know one is not alone! Don't worry about the lump in the throat - as everyone else has said it is not an indicator of something serious but more likely to be due to the anxiety that people like us experience when worrying about our symptoms. All the bestSimon
 
Simon and Ed, Thank you, thank you, thank you. I promise to change my ways of always worrying about this horrible disease and live life to its fullest. Whats going to be is going to be right? I will call my doctor and ask for his help and get me on the right medication that will help me stop through this. I will keep you posted. Wish me luck and thank you for all the advice!!! ~Danielle
 

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