Twitching Everywhere: BFS Worries

[miguelwo69]

HI I started twitching in mid June, first my calves, then by aug 1st the twitching was everywhere even my tongue. found this site before it went down and it relaxed me a bit as my symptoms sounded like BFS. however iI am worried again. my right hands feels weak I still have the same strength when I squeeze something but it just doesnt feel "right" This has been pretty consistent since Aug 1st and doesnt appear any worse yet. I have a neurologist appt in Oct but the fear of the unknown is killing me. Do you think I have BFS or early stages of ALS? [/b]

 

[Alonzo]

I DONT KNOW ALL THE ANSWERS BUT HAVE LEARNED ALOT ABOUT ALS
ALS IS PROGRESSIVE AND RELENTLESS.
BY THE TIME YOU HAVE FASCICULATIONS WITH ALS YOU WOULD BE VERY WEAK. ASK FOR ARRON TO WRITE TO YOU HE IS VERY GOOD AT REASSURRENCE AND THE BEST TO TALK TO ABOUT BFS

 

[twitchjake]

paranoid, relax, what you describe is common with BFS and that is EXACTLY the kind of "perceived" weakness people confuse with "clinical" weakness. Percieved weakness is more of a fatigue thing and fatigue can settle in any limb or muscle or your whole body. It can last a few hours, a few days, a few weeks or even months. That is what scares so many people with BFS (or fibromyalgia which you may have instead of BFS but that too is benign) into thinking they have something worse and that they are getting weak with ALS and that isn't the kind of weakness that is associated with ALS. Read the other posts in this web site and you'll learn and start to relax. See that neuro when the appointment comes-up so you can rest your mind. ALDS twitches do not start like that and then spread all over like that. They do spread but with a uniformity to them and they progress, what you describe is random twitches all over and that is not like ALS at all. It is also VERY common for BFS to show-up and stay in the calves, just like what you have. It is also NOT like ALS to start in the calves

 

[Alonzo]

Thanks Alonzo,
I logically try to tell myself I am o.k. but reassurances like yours make it a little easier. It is hard to wait for the neurologist appt. would it be correct to assume that if I felt weakness in my hand at the beginning of Aug it would have gotten worse by now if I had A.L.S. ? As you know it is very debilitating to worry. I have spent the last 3 months in a complete daze which leaves me less to give to my family. It is hard to concentrate.