fisherman357
Member
Hi Everyone,About a year and a half ago I started twitching 24/7. I went through the ALS scare and got through it. Even though the twitching in my calves hasn't stopped in almost 2 years, life returned to near normal. Then, a couple months ago, I started getting really dizzy. After about a week, I looked my symptoms up online (stupid, I know). Every time I typed "muscle twitching" and "dizziness" in dr. google, multiple sclerosis came back. Once again, I spiraled into a state of perpetual fear. I went to get an MRI, and as I lay on the table, my entire body twitched. Surely, I had something terribly wrong, right? I didn't need the MRI to know the outcome. Yet, much to my surprise and relief, the MRI was negative. So, my neuro said I needed to see an ENT. The ENT checked me out and said I have migraine associated vertigo. This seemed like a stretch. But, it is a real condition. People get dizzy from migraines without even getting a headache, and sometimes the dizziness lasts for months and even years. The reason I wanted to post this is because, even though BFS is not a fatal disease, the psychological nature can be crippling (as we all know). Chances are, everyone on this board will experience other medical conditions in their lives. Every time a new symptom shows up (not associated with BFS), it will be an accompanying symptom to the twitching (in our minds). I couldn't go to my doctor with the symptom of dizziness alone. I had to have muscle twitching AND dizziness. If I've been diagnosed with BFS, then isn't that a separate condition? If I'm being honest, the only reason I brought the twitching up to the doctor is because in my heart, I didn't believe I had BFS anymore. True, I had been diagnosed with BFS, but it was really just the start of MS. The point is, if I truly believed the diagnosis from my neuro 1.5 years ago, then I shouldn't have thought that BFS turned into MS because I suddenly became dizzy, if that makes sense. Does anyone else do this? Is it hard for others to separate BFS when new symptoms (ex. dizziness) present themselves? The truth is, I'm exhausted again. The first bout 1.5 years ago put me in the darkest world, only to come back to that place again. I'm so tired of living in fear. But, I'm slowly crawling back out. I hate to say it, but the fear has changed my personality. I can't sympathize with people like I could before. I hear people complaining about having colds or the flu and I don't care. All I can think about is how horrible it is for those suffering with ALS and MS. My twitching is nothing either. But the fear is real. I really wish the governments of the world would focus all their efforts on curing ALS and MS. IMO there is no greater tragedy in the world