Twitching Calves for 20 Months

[KrackerjacksyBeel]

Ginny,

I'm going on 20 months now....and the calves are constant. I don't mean once every minute. We are talking once every second at times. I worked out my upper body earlier this evening and what started going crazy? My calves....very weird....they are finally settling down to once every 5 - 10 seconds. Calves are a VERY common place to twitch. When I was in my initial freak out stage around 18 months ago I noticed my brother-in-law who excersises 5 days a week was sitting on the couch in shorts and what was twitching every 5 seconds?.....his calves. And no he does not have BFS.

Now if you said you were twitching and couldn't walk on your tip toes or heels and couldn't walk up stairs or stand up from a squatting position then you may have a reason to be concerned. But I know from your many posts over the last few months that you can do all of those things.

It sounds crazy but when I start twitching in a hot spot I tend to excersize it just to make sure I'm not losing strength...STUPID but true.

The whole calve thing freaks me out every now and then but when I first noticed the BFS saga I started doing calf raises while standing. I was only able to do 45 using both legs at first.....now 20 months later I can do 150 on one leg....another weird thing is that my calves have not increased in size.

One last item. I have noticed that when ever I work out with weights and get "pumped up" my muscles will stop twitching for a while...even my calves. They will stop for about 30 minutes. My upper body won't twitch for 6 + hours, then it kicks in and will go off and on for a few days then tapers off.

Hang in there

Paul

 

[EyeoftheWild]

Hey Ginny,

The twitching that started it all for me was my left index finger, it led me to the "bad websites" and to the worst three days of my life. As fate would have it, my wife was away during that time (3000 miles away) and it was definitely not something that I could unload to her over the phone. In the end I think that it was better that way, going through it alone made me stronger, although I am definitely happy to have her support now. In any event, the original twitch has completely stopped and been replaced by body wide twitches, especially in the calves. My legs feel tired all the time, even when I wake up in the morning. Sometimes the twitching seems to abate and then it comes back with a vengeance, popping and crawling all over the calves. I have even had the butt-busters as Lovely so eloquently coined them. The other day I was showing off my pulsating calves to my youngest daughter ( I have 2) and she said, "So, mine twitch sometimes too, no big deal." She is completely unaware of any disease associated with twitching. She dances 3 times a week, walks to and from school, swims, takes piano and cello lessons and is the picture of health. I felt chastened by her laissez-faire attitude toward her twitching. It helped to put things in perspective, I know she is well and there is nothing that I wouldn't do for her if I even suspected for a moment that she was unwell.

I don't know if that helps, but it seemed relevant to me. Wishing you a great day.

Cheers,
Basso

 

[garymills]

Ginny,

I can never look at my calves and not see some sort of twitching. Not even for three seconds. Some portion of my muscle is constantly going. It is mentally challenging, but after nearly two years (next month) I'm getting use to them.

Take care,

Gary

 

[Lotsofgirlshere]

I had a similar issue when the inside of my knee/thigh started twitching almost constantly (every 5 seconds or less). It lasted for 11 days and then started to subside and was gone a few days later. Until then I was a thumper - with random twitches that lasted a few seconds somewhere and then moved on. My hot spots would twitch daily for a a week or two but only about 10 times a day. The closest I had come to a "constant" twitch was something that lasted about 2 hours and happened every couple of minutes. The knee thing sent me back to square 1 mentally. Since then (it was about a month ago) my twitching is back to mild. I guess flare ups that are completely different than past experiences just have to mean NOTHING without weakness. Next time it happens I guess I won't panic as much and maybe it will pass sooner. Try not to worry - especially because it's your calves that are twitching.

 

[joeyate1]

i'm 2 years into this almost and it seems every week i get a new hitspot for a few hrs or days then gone.2 years ago it was my calves that set me off. but the last 1 year i've enver even looked at my calves and they don't bother me. my annoying twitch is my lower eyelids that happen every now and then. the last year the fear of als or ms is gone and i don't have anxiety but the twitches stay. i refuse to believe this is anxiety. yes an eye twitch or muscle moving here and there could be but constant for years no way. somehow are brains is constantly signaling are muscles to move

 

[GinniferLynne]

WOW,

What a SUPPORT site.

AGain, let me apologize for being an insane, crazy, over-emotional, sobbing, weirdo, whacko poster last night.

I should NEVER have taken the internet trip. I mean, am I into self torture or what?

I am seeing my GP on the 25th, my husband is going with me. I'm not only going to ask for an EMG, but also how to deal better with this anxiety. I am, at least, going to really try to help myself in any way I can.

ALL OF YOU on this site have really saved me emotionally. I mean it. I would hate to think about where I would be if it weren't for all of you.

Maybe I can get my mind in the right place, and in turn, help others when they go bonkers.

You all are great people. Totally non-judgemental, supportive, understanding.

Merci'
(I wanted to say something other than a regular "thank you"

Ginny

 

[Diego4Life]

Great post and I am so glad that you have conquered the fear, and yes I get the cramps with the fasciculations.... calves and feet. Oh the joy of BFS!

Diego4Life