Twitching Buttock - Coping with Despair?

Highlights Only
E

edadoStar

Well-known member
I am one at the lowest points ever experienced. My right buttock is twitching constantly (walking/ not walking, sitting/standing). Twitches got worse, in opinion, since the onset almost 4 years ago. But, with good and bad days, I could cope. Now, it is 3 nights that I sleep so little and, even if I previously mentioned other persistent twitches (abdomen, shoulders, eyes), this far more distressing. A really active, strong, constant, twitching. Above all, it is concerning me.With 3 years and 10 months of twitching, I should not be bothered, but yes, I am.
 
Try not to fixate (easier said than done, we all do it). Try to rationalise, I you weak (clinically weak!!) have you lost muscle in your buttock?? Are your buttocks the same size??? When I saw my Neuro he said in the 30 years he's been qualified in this role he has only once ever seen someone come in to him with Fasics that developed in ***. But he said even that had special complications around it and it certainly wasn't 4 years on.We all know that when we obsess, we drive our anxiety this then drives the super highway of nerve ending in our body. Try to get some sleep with some meds if necessary. Not sleeping also drives depression, tiredness and then perceived weakness (I've done it myself) it becomes a vicious circle.
 
If you cannot get any sensible sleep with the anxiety, then I would say try some exercise to make yourself physically tired. But you seem to be quite activie with your exercise.See if you can take something herbal to relax you and that maybe the gateway to better sleep and help cut down tiredness and anxiety, which I sure will help with the twitching.good luck
 
I get those butt twitches all the time. I recently started Gabapentin (again) and it has really helped cut down the twitches. I tried it once before but I think the doctor gave me too low of a dose. Maybe you should ask you doctor about some meds. Why suffer?
 
I don't know...I am living a nightmare 47 months after the onset of my symptoms. Last night at 5 PM I woke up twitching everywhere. Powerfully. The right buttock, as I said, is twitching 24/7. As you may suspect, I am scared that things have twisted for the worse. Even this morning I have been wondering if it was time to go for a new check, but then why? 3 years ago I was discharged as normal and prior than that, 1 year before, I had a normal EMG (besides one fasciculation on my right triceps, which interestingly was playing up the most at that time). What could I be told? My understanding is that weakness is the bottom line and there is not weakness I can tell.Besides, there is nothing much can be done. I heard a few happy with Gabapentin, but once again I try to look ahead and I am again unsure.I have tried every supplement.I am mostly scared for my family, to be honest. I am not longer my usual self.I suspect, I may be able to give myself 1 week before I will be pushed to go back to the Neuro, albeit my skepticism. Most simply because my energies are almost totally gone.
 
You are just havinga hotspot right now. It will stop. My eyebrow has been twitching for days now but I am not letting it bother me cause I know it will go away. Just try to relax and not get worked up. You have had this for so long now. Your right about the doctors. They aren't going to tell you anything new. I just found that out when I went to my neuro 2 weeks ago. He said it's benign and it could last forever. It is what it is.
 
edado - so sorry to hear about your symptoms. When I couldn't sleep - that was the worst time for me. That is when I took Gaba for a while as I am also a confirmed no-thank-you-to-pharma person. I took it just for 6 weeks then stopped as things had tapered off - it didn't reoccur. The lack of sleep makes everything worse so it is worth it to try something even if it is for just a few weeks (although Gaba sometimes takes a few weeks to have a total effect on some people I am told). After we tried to see what dose was good for me, then at my neuro's advice I took a light dose ~5pm and then another at bedtime so the double dose was only active while I was sleeping and I had less morning groginess. Also - it didn't affect my day time hours much this way except for being more refreshed and able to deal in general because I got a good night's sleep.As far as a new check I haven't been back for a long time either to the neuro. But for me it's more because I feel I've gotten a grip on it and it is more in my hands. But that's a whole other story. There is no reason for fear and you know it but a check-up is not out of line and it may help to reassure you. Look at you, if this crap wasn't benign then you wouldn't even be doing your runs by now since you've had it so long. If you had any kind of progressive disease that would have ended a long time ago. I have to say though that the night-time stuff really got to me also as it seemed to be a big deal to the docs that it was happening in my sleep and waking up my husband etc. Like this was proof it wasn't hypochondria or something. Duh. But it is somatic I am sure as the unconscious mind does not sleep and this is the only way I have had success in alleviating my symptoms; to educate myself on this and approach it that way (as an action of the unconscious mind). But we each have to find their own path out of this maze. Please find a way to get some rest so you can function better.
 
yep get those on and off, usually associated with muscle tiredness. they will move on....eventually, they always do. Hang in there.Your lack of sleep would not be helping.Oh yeh..a comment 3 hours, 3 days, 3months, 3 years- the time is irrelevant. we dont know your symptoms or your situation. There is no magic number of when you should be supposedly 'not bothered' , everyones situation is different. Get that out of your head. see yaRodger
 

Users who are viewing this thread

Total: 1 (members: 0, guests: 1)
Back
Top