Hi,So I read in Alonzo's post about the twitchesOkay so I don't have to be scared about the big ones.But I read about the little ones etcNow, I got really little ones in my fingers, UNDER my feet, on my shoulders an my tongue, it feels like tickling/small vibrating. Also I'm getting little cramps in the fingers and calves. I got 4 emg's in the first 6 weeks of twitching: 3 clean + 1 where they saw fascics in my leg. Now I'm very worried that those little ones could be related to ALS, as I read here, also the cramps are a next step in the progress right?Really upset now because I think the neuro's have made a mistake or it was to soonBart
Twitching and EMG Results
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His point is that the fascics we have are not the kind that are apart ALS symptomology. I think he is defining fascics as those that are caused by ALS. Most every neuro you read or talk to say that the big, visible twtiches are nothing. ALS twitches apparently are very fine movements. Again, if it was ALS, it would not be the fascics that first get your attention.
There are NO DISTICTION BETWEEN TWITCHES....ANY OF THEM! PERIOD. They are BENIGN if NO OTHER PROBLEMS ARE found with them such as CLINICAL WEAKNESS, ATROPHY etc. On the EMG, SHARP WAVES, FIBS, MUPS, etc. FASICS ALONE ARE NOT INDICATIVE OF ANYTHING OTHER THAN WHAT THEY ARE FASICS. There are some Fasics that dont even REGISTER on a EMG because they are sooo small and fine..but that doesn't mean a DARN thing w/ out the PSW's , FIBS and other signs.Why is everyone CHERRY PICKING things out of a million words and DIAGNOSING THEIR SELF. This site used to be nothing but POSITIVE. I truly admit I almost HATE looking at NEW THREADS NOW because people are discecting every word and running with it and believing ANYTHING but their 1-5 NUERO's that they have seen and their handful of EMG's they have had.. Its RIDICULOUS at this point and it does NO GOOD FOR NEW COMERS! Just being honest here- Lovely FASICS ALONE ARE NOT INDICATIVE OF ANYTHING and IT DOES NOT MATTER WHAT TYPE!!!!! PLEASE!!! STOP WITH THE SAME QUESTIONS!! AND SELF DIAGNOSING! Your NEURO's are NOT IDIOTS AND WOULDNT LIE TO YOU! Its NOT A CONSPIRACY YOU GUYS!!!! 
P.S. A TRUE STORY- while I was seeing my neurologist she told me she has a MAN that has literally his WHOLE BACK fasciculating. Someone had to show it to him or he would have NEVER known. He came to her in a panic ofcourse because it was so freaky looking (BAG OF WORMS , ROLLING FASICS, ALL OVER BACK 1 LOCATION and HE COULD NOT FEEL THEM etc)..Clinical EXAM FINE, Strong as a OX, EMG FINE...NOTHING MORE THAN A AWFUL CASE OF BFS! That was 2 years ago I think she said.( I come to her my neuro) more than HE DOES. 2nd Story- TRUE STORY- She told me during my EMG- She has another guy young in his 30's ...Has fasics soooooo bad he can't sleep. He came to her anxiety AMP'D UP sooo bad with these twitches - She could see them w/ him walking in the door- visible under his shirt, constant, accompanied w/ a lot of cramping in his legs etc. I think a year now...he's been seeing her- NOTHING MORE NOTHING LESS BFS...HE has to take tegretol and neurontin..... to get through a night along w/ ambien and one other drug she mentioned. He only see's her every 6 months for a med follow up.......See where I am going here you guys.... I am not trying to be harsh again. Infact I have to be this way to myself ESPECIALLY NOW in my recovery time! Because NOW I am dwelling on BULBAR ALS.. Which is scary- I know its my mind playing TRICKS ON ME because I finally could get over the fact I didnt and dont have LIMB ONSET ALS...So my ANXIOUS mind is going to pick out something else for me to "FREAK OUT ABOUT"..its a endless battle and I yell and scream at myself a LOT!!Bart, JUNE 4th I believe you have a APPT with a WONDERFULLLLLLLLL NEUROLOGIST!!! Take a note pad hon. Print out things you read..Take the most RAREST CASE SCENARIO with you- Show him/her get their OPINION! ALSO, go ahead and ask about BULBAR ALS because if you have anxiety like me..that will be your next stop. (sorry not hoping power of suggestion on you) but it seems to be a phase with people. They get the clear EMG's of the body then focus on "What if its BULBAR als".. SO go ahead and NIP that while your there ok hon.Love ya Bart....you know I am coming down hard on you because you NEED IT and I NEED IT..Heck makes me feel good knowing I can say these words and BELIEVE IT NOW!!!! Even for myself!
P.S. A TRUE STORY- while I was seeing my neurologist she told me she has a MAN that has literally his WHOLE BACK fasciculating. Someone had to show it to him or he would have NEVER known. He came to her in a panic ofcourse because it was so freaky looking (BAG OF WORMS , ROLLING FASICS, ALL OVER BACK 1 LOCATION and HE COULD NOT FEEL THEM etc)..Clinical EXAM FINE, Strong as a OX, EMG FINE...NOTHING MORE THAN A AWFUL CASE OF BFS! That was 2 years ago I think she said.( I come to her my neuro) more than HE DOES. 2nd Story- TRUE STORY- She told me during my EMG- She has another guy young in his 30's ...Has fasics soooooo bad he can't sleep. He came to her anxiety AMP'D UP sooo bad with these twitches - She could see them w/ him walking in the door- visible under his shirt, constant, accompanied w/ a lot of cramping in his legs etc. I think a year now...he's been seeing her- NOTHING MORE NOTHING LESS BFS...HE has to take tegretol and neurontin..... to get through a night along w/ ambien and one other drug she mentioned. He only see's her every 6 months for a med follow up.......See where I am going here you guys.... I am not trying to be harsh again. Infact I have to be this way to myself ESPECIALLY NOW in my recovery time! Because NOW I am dwelling on BULBAR ALS.. Which is scary- I know its my mind playing TRICKS ON ME because I finally could get over the fact I didnt and dont have LIMB ONSET ALS...So my ANXIOUS mind is going to pick out something else for me to "FREAK OUT ABOUT"..its a endless battle and I yell and scream at myself a LOT!!Bart, JUNE 4th I believe you have a APPT with a WONDERFULLLLLLLLL NEUROLOGIST!!! Take a note pad hon. Print out things you read..Take the most RAREST CASE SCENARIO with you- Show him/her get their OPINION! ALSO, go ahead and ask about BULBAR ALS because if you have anxiety like me..that will be your next stop. (sorry not hoping power of suggestion on you) but it seems to be a phase with people. They get the clear EMG's of the body then focus on "What if its BULBAR als".. SO go ahead and NIP that while your there ok hon.Love ya Bart....you know I am coming down hard on you because you NEED IT and I NEED IT..Heck makes me feel good knowing I can say these words and BELIEVE IT NOW!!!! Even for myself!SharonSmoove
Well-known member
hey yalook, i've had 8 years of constant twitching. the twitches include large thumping ones, especially in the back, stomach shoulders. ones that make my fingers move, ones on legs, face, eyelids, even knees, some are light and hardly visible, others that shake the muscle. you must remember it is profound weakness that is of concern. for me twitching hasn't ceased but i have learned to live with it. hey, i'm alive and kicking it's not a death sentence. anxiety is whats going to kill you guys, quit dissecting everything positive people write. arrons post was quite clear, clean emg, no clinical weakness a benign syndrome. dam annoying but benign.if ya have aches or pains, it means your a normal person,don't relate it back to a connection to als just because you twitch as well. fasics on emg are just that , with no other negative reading they are harmless, lots of people who have bfs have them show.try and relax, i'm telling you from experience you will waste lot of precious life worrying.take care asharon.