Twitching and Calf Pain 3 Years In

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AmyLou29

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Hi all, I'm over 3 years in and still twitching constantly! For the last 2 nights I've had terrible sharp pains in my inner calf, it's like they're going to cramp but do t quite get there. They size up then relax over and over, it's carrying on in the day too. I am twitching ALOT in that calf.Is this part of bfs? I've never had cramping before, why would it start now? 3 years in? Thanks, Amy.
 
I am just over three years in as well. I have cramped from the start, but still have a new symptom. Just when I thought I've had them all - now it is the shortness of breath, sort of holding my breath (unconsciously) and then gasping. It is the constantly moving and changing nature of bfs. Yes, it is all bfs.
 
That must be awful for you! Why does bfs cause that! I'm not sure why I'm getting this cramping all of a sudden, of course I've got myself all worked up again and I'm sure that's not making things any better!
 
I have a question, I have read on the Internet from a man who has been diagnosed with something other than bfs that it's medical jargon meaning the Drs don't actually know much about it, is this right as when I asked my gp about the cramps being part of bfs she said she really had no idea! I'm just wondering whom exactly we are supposed to go to for advice if our own gp's don't seem to know much about this.
 
Not that anyone's reading this but just been to dr who agrees left leg is smaller than right but said it can be normal. Arranged blood work and emg at my request.
 

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