Twitching & ALS Progression Study

[Tkplrjtrim]

Asterix, you wrote:

"Another study investigated the progression of ALS patients who
presented with twitching as the only initial symptom (6.7 % of all ALS patients) In this group, the onset of serious symptoms (such as weakness)
occured on average after 7 months of twitching, with an maximum of 13.4
months. So, once again, it would be almost impossible to still develop ALS after years of twitching only. "

While I'm sure you are trying to make long time (1 year plus) BFS'ers feel better I fear you are freaking out shorter term BFS'ers. Basically it sounds from this information as though anyone twitching really needs to wait 13.4 months to be sure they're okay. I've done extensive research in this and have never encountered this study and, in fact, everything I have found has suggested a much shorter time frame (anywhere from 3-6 months in most cases). Where did you get this from, what is the source?

P.S. Aaron you've read a lot too, ever heard of this study?

 

[FreddieTheFox]

Try your nearest University that has a medical program. If you can't get to it, send me an email with your address and I'll mail you a photocopy of it.



_BoyyDavo_Man

 

[CautiousExplorer]

is it correct that we have to wait until 13 months and 4 days? or 4weeks to be sure?CAn it take so long to get weakness? 13.4 months????A little bit further I read that those people had initially clean EMG's so ? A clean EMG is not always No ALS ???

 

[CautiousExplorer]

This study seems strange. It says 3 - 13 months right. The cases i have read from real world is ppl first seen bicpes twitch and two week later they cant lif the cuffecup. that is 2 weeks. I got more examples. so i have to say the interwals seems weird somehow. Also the fact that it dosnt say how the twitch goes. Bodywide explotion or localized. I guess on the second.To add more bfs got more specific things, like you can feel mostly of the twiches, always in relaxed or muscels not directly in use. ALso it seems to happend to hypocondric persons somehow, like myself. If I wasn't selfdiagnoes with other nasty stuff before the twiching began i would be more scared. Its just like the top of everything else.One more thing, nobody under 40 was in this study.How about cramp? Does the study say anything about that? cramp together with twitching is more bad sign that just twitch?