Twitching 24/7 - Am I Unique?

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FowlerzFrankWaters

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When I read the posts from my fellow twitchers I often wonder if I'm unique in my twitching. The twitching in my calves and feet have been non-stop, 24/7 for close to a year. While others also twitch in these same areas, from what I understand they experience relief (stops) every now and then. Am I unique?
 
I think that if you kook a little deeper you will find that many of us have exactly what you do, I myself have been twitching in the calve and feet non stop 24/7 for allmost a full year .

John
 
Thanks John for replying to my post. I've done a lot of reading on this site and I do understand that many people twitch in their calves and feet but I'm just curious how many of these people twitch 24/7. Hey John, how do you cope with this, I'm looking for some good suggestions. Also, do you get aching muscles and cramps?

Ray
 
Ray& John

Mine is mostly in my calves and feet too. I wish I knew why it settles there in many people. I can say mine isn't 24/7.
I don't really think it matters if it is or isn't. It's bfs all the same.

Me
 
Ray
Oh yes ,muscle cramps and aching is all part of it ,allthough my legs are not near as bad as they were early on they still twitch all the time .One day will be bad and the next not so bad . I do not get the soreness I used to get and I have cut my Clonazepan in half as of the past 6 weeks . How do you deal with it ? Wow! the$64 question . At first I was so depressed I did'nt care ,but as I started recovering I kept busy, did what ever I could to keep moving ,for when I was still they would drive my nuts,and I would be doing something untill I was to tired to keep my eyes open.
As time passed the twitches became a part of me as if they belonged to my body as does my hand or my leg.
I am not saying that they do not bother me at all,for they do, but it is only a small nuisence now .
Man can get used to anything no matter the condictions.If you were in the desert and the only hat to cover your head was 2 sizes to large, would you throw the hat away ,no you would not, the hat is crucial for survival . You would have to face the fact that you have to get used to a hat 2 sizes to large and go on to live .
My legs are going to twitch ,and what can I do about it,nothing, besides try to stay as stress free as posible and go on with life .So you twitch ,now you have something to show of at parties ,Ha,ha.
I know that this is a little long winded and my analogie may not be the best ,but I think it coveys my point .
Deal with it in what ever manner you have to ,maybe you can find the secret and share it with the rest of us.

John :)
 
I too twitch 24/7 in my calves, ankles and feet. I have been for nearly five months. It does wear on me, but I just keep trying to fight the good fight. My biggest problem has been the muscle fatigue/pain in my thighs. But I just try to remember it could always be worse.

Do not feel alone, there are alot of people on this forum with the exact same problems you have.

Gary
 
I too twitch 24/7 in my calves and have done for 7 months now. I have good days and bad but it never goes away. How I deal with it depends on my level of hypochondria. When I'm feeling OK I tend not to notice it too much. I also have achy tired thighs that comes and goes and random twitches all over that never settle anywhere. I'm used to it now but that doesn't stop me from bouts of paranoia despite being told by a neurologist that it's benign.

Karen
 
John, Guest, Mike and Gary

You don't know how much I appreciate your replies, thank you. John, I loved your analogy with the hat! I guess we all have our own methods to make the coping process easier. When I first noticed the twitches I could not sit down and relax if I did I always moved my feet which seemed to help take my mind off the twitches. Eventually I had to put an end to it and just except the twitches and stop moving my feet. When I was on Effexor it helped me to cope and reduced any other twitching that was ongoing in my body due to anxiety but since coming off it two months ago I find it very hard to cope, not a minute goes by that I don't think of this annoyance. I don't want to go back on Effexor (Weight gain and my determination to do it myself) but perhaps I should. On occasion I take Clonazapam too but I try to keep it to half a tablet just to keep the edge off. This past month I noticed tingling in both hands which worries me but I guess it's just another BFS side effect.

Again guys, thanks for your replies!

Ray
 
Hi Karen, I just noticed your reply, I didn't mean to leave you out of my previous reply, thanks for replying too. Karen, have you tried any medication to help suppress any of your twitching? Also, do you find that any exercise you do aggravates the calves and feet twitching? I too am a Hypochondriac, I wonder if I resolve that issue perhaps I cope much better!

Ray
 
i have twitched 24/7 in calves mostly the left one and feet for 20 months now. clean emg and several exams all normal.
my neuro who is a specialist in als and a nerve and muscle disease dr. has told me over and over it is BENIGN..i may twitch for many years and it will never become muscle disease so i need to learn to live with it.
if you search here and other sites you will find MOST ALL PEOPLE WITH BFS twitch in the calves a lot and most 24/7.
i run miles work out and have no weakness at all.

hope this helps

scott
 

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