Natalie2.Natalie3
New member
I have been twitching for twelve months. It's been the worst year of my life. You know the story...written my will and yes somewhere the thought still lurks that I am checking out and that I do have ALS.I have had five EMG's whilst some change is seen no deneravation as yet. However, my fear is quite simple. My first twitch started in my right arm. Initially I had them fairly infrequently and now twelve months on they are very fine and they are almost continuous hence my last EMG at the begininning of November. My twitching often happens in a muscle that is not relaxed. Can any seasoned twitchers say that there their twitching is sometimes in a muscle that is not relaxed? Secondly, despite having read "BFS in a nutshell" are there any seasoned twitchers who have very fine ones and are not visible that are almost continuous. Surely if this was ALS it would have been picked up by now on the EMG? The neuro I am under has asked me to focus on running a marathon I am too exhausted to make the stairs at home. This has all just been life altering forgotten what life was like before the first twitch. Help please..
)) I do not have contionous twitches but I also have hotspots of very fine buzzing which is very common for BFSers as far as I can see.With 5 EMG in a year there is a great chance (A GREAT CHANCE, I would say) that denervation. long MU and all that specific ALS-related picture would be revealed. In fact, good clinical exam and lack of ALS picture on EMG plus lack of clinical weakness are best indicators to rule ALS out.Fatigue and excersise intolerance are also very common in our community, especially in wintertime.