Tried Immunosuppressants & Tests?
- Thread starter piston
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JoggingCub
Well-known member
Not me, and I never would. Why would you want to suppress your immune system for a benign condition??
JoggingCub
Well-known member
Yes, of course, and it would be very interesting to see, to know if BFS is auto-immune related, but prednisone is wretched stuff, and I'd choose to live with my twitches rather than take it. But that is just me. 
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)kschoenhaut
Well-known member
If the side effects are worse than the symptoms of the stuff you have it's not worth, i think in the case of prednisone the side effects are similar or worse than those of bfs.
seadragonsovereign
Well-known member
No I haven't tried any, but my neuro and I had a pretty good discussion about it. There are theories that at least one form of BFS is auto-immune related. Your immune system is overactive and it is searching for something to fight even when there isn't anything there. So it attacks your nervous system. Some on this site have noted that when they are sick, their BFS symptoms abate. This would make sense if the theory is correct (however, others have posted the opposite - that bfs symptoms worsen when they get sick). Mine started after a bout with some kind of flu bug. I haven't been sick since then (now in 23rd month!) but the BFS symptoms causes tens of thousands of twitches in me every day. So I'm thinking that my immune system is "too strong" (and it is probably even stronger with all of the various supplements I have tried over the last couple of years - still on lots of vitamins). My neuro didn't discount this theory and in fact suggested that we think about trying prednisone for a short term period (a month) just to see what happens. Because of the side effects, I'm a little hesitant to try it. But maybe some day. So if you go ahead and try this, please let us know what happens.