Tremor, Sore Spots, Twitching

[AndyStreams]

hey everyone. Today I had my second EMG, my first was about a year ago, about 3 months after my twitching began. I have not been doing well lately; I've had horrible and incredibly painful sore spots all over my body and more disturbingly, I've developed a tremor throughout my body. So many different muscles are shaking with minimal exertion. And last night, I was holding a beer bottle in my right hand and it was shaking and I felt too weak to continue holding it my right, dominant hand. I switched to the left side, and it was fine. Couple this with my feet scraping, the very obvious ridge in my thenar muscle between my finger and thumb and the "cant feel only see" fascics I get there only when I flex that muscle, and I was pretty troubled.So I had an EMG scheduled for today, and I woke up thinking there was a very real possibility that I would find some life-changing and horrible news today. I tried to stay optimistic and I actually wasn't an anxious wreck, I was just recognizing that today could be the day that I heard some very bad news. But I didnt; the doctor told me that the preliminary report shows zero concern for als. I'm friggin psyched. A year after my symptoms started and with my very clear tremors and potential atrophy, I would think it would definitely show up somewhere. They did two in my foot/calves, two in my troublesome thenar, two in my arm and one in back, plus a bunch of nerve conduction tests. I'll wait to hear what my docs say but they told me they didn't see anything that would have them concerned about als at this point. I don't know if I have BFS. If all I did was twitch, I'd be 100% fine by now; twitches dont bother me anymore. But all the other symptoms I've gotten make me feel like its SOMETHING. but I don't care what that something is as long as its not als, and todays emg made me feel much better.

 

[sparkrlock]

Hey Andy-CONGRATS man! WOOO HOO! I am scared out of my witts for tomorrow. Just like you said its because of the tremors and other things that I see that really worry me. I have had the tremors since day one BEFORE I had twitching though. Those are what sent me to the doctor and then the twitching started. Tonight I went shopping and the arm that I was carrying the basket in was shaking so bad I could hardly hold my cell phone on the way home. But its been like that for a long time and I had 2 negative EMG's in that arm at 3 and 6 months. I am just freaked cause its been about a year since my last one and how I feel. Well keep us posted on the final results but like you said...they said you are pretty much clear for what you were most worried about so thats reason to celebrate (and from what I have read you like do that). So have some shots for your good results today and have one for me while you are at it. Sweet! Sean Block

 

[dogbigsail]

Andy,I am so HAPPY FOR YOU.....I know you have been worried and I am so glad it turned out GREAT, now go celebrate and don't look back....Let us know what your neuro follows up with I wonder if he will mention bfs.....Leigh

 

[SonicSonic20]

Andy, great news! Like you said....you don't know if it's BFS, but you know what it is NOT! I am so happy for you, it's a relief....I know exactly how you feel. ) We all know how worried you have been. Take your good news and run with it.Go drink a beer and who cares if you must hold it with your left hand....LOLHave a great night,Amy

 

[EyeoftheWild]

Hey, Andy, cool about the results. That is a big no-brainer to everyone here, but your journey is your journey. Everything that you have described as a "concern," is amply described on the board. When you have bfs there are a myriad of symptoms that can, and eventually will, present themselves. Three years on, I still have all manner of oddities. In a sense, getting over the worry of this syndrome is choosing to be over it. There is a cyclical pattern where people feel relief, like after an emg, and then the process of winding themselves into a worry ball begins again. If a random person off of the street, who did not fear als, had an emg proving he was fine, would that be cause for celebration? No, not really, it would not, because there is not ingrained pattern of worrying about such a disease. There is comfort, too in commiseration with fellow worriers, and this is all good, except where people begin to support one another's fears. Remember, we are all attracted to those who believe similarly to us; it is comforting to be with others who share the same bias. Revolution is where it is at; the spirit will accept no less. To forgo the necessity for a third emg in a year's time, you will have to break the pattern of what now grips you. How you do this is up to you, but we all have some truth that we recognize in ourselves, and this is the greatest of all starting points.Basso

 

[zinflodia]

Good to hear Andy. I know how troublesome the tremors can be, but have heard it often on the boards by others, just part of the whole deal for some of us I guess. I hope you get the reprieve you are searching for my friend.

 

[sparkrlock]

Beautiful words Basso. I really hope that I can move on after tomorrow's emg. I am scared out of my witts. As long as my neuro gives me the "its all clear and I see nothing to worry about"...but then does not follow up with "well we need to wait and see for now" like he has in the past at every visit I will be able to move on. I have my mom and my wife going with me tomorrow to really try get him to give me some better answers and assurance. Tonight is going to be a friggin rough night and I dont want to have any more nights like this EVER. In the past on my last emg he has said "oh well we dont really need to do more than your arm/hand"...and I want to look like a porcupine tomorrow ha ha. Uggg...well here we go.