Treating BFS Buzzing/Vibrating?

[AlisaHopeAmber]

Hi All,
I really want to know if anyone has had good relief from the buzzing and vibrating sensations that come along with BFS for some of us, and what medication or therapy worked? I've been thinking of trying accupuncture. I am starting on Neurontin, and already take Klonopin. Seems like the Klonopin isn't very effective for these annoying symptoms.
Thanks!
Karen

P.S. Also suffer from the trembling sensation when laying down to go to sleep, and again when I wake up.

 

[Selena647]

Hi Karen.

I have not had any relief either from my buzzing, vibrating, and twitching. My GP or my neuro have not perscribed any meds as of yet (except Lorazapem occasionaly for anxiety....not sure it really helps though!) I just wanted to let you know that I have that same tremor type feeling when I wake in the morning. I don't feel any other time...just when I wake up in the am or if I wake up during the night for a bit I feel it then too.

Your not alone!

Barb

 

[coolcat]

check for lyme? i had the trembling in back and i took antibiotics and it seemed to work. i guess the undetectable lyme was sitting in the roots of the nerves of the back. it produced the wierdest sensations.
eric
ps it was really getting bad for awhile there.

 

[katiecarolyn]

Eric

Do you recall what antibiotics that you took to help you? I am seeing a neurologist on Friday and after 5 months of no relief, I am trying to arm myself with as much info as possible before I head in. Also thinking about seeing a Lyme specialist as another resort.

Buzzygirl

Have corresponded with another who said Neurontin worked well for him and his tremors. Keep us posted on how it goes.

Caroline

 

[garymills]

Caroline,

Good luck with the neuro, I hope he/she can help you. One word of caution, avoid any antibiotic in the quinolone class (cipro, levaquin, tequin, floxin, amicrobin and others). I just read a medwatch study today that showed that these ab's can exacerbate underlying neurologic issues that you may have, and they can actually cause BFS type sxs in healthy people. So please proceed with caution.

On a different note, I think that the neuro is not a good option if you want to pursue the lyme possibility. It has been my experience that they quickly "rule out" without even testing for it. Now i don't think i have lyme, but I was concerned about it at times in the past year and a half and have asked every neuro I saw (three), "do you think this could be caused by lyme?" Everyone of them said no before i could complete the sentence. So if you are really concerned about lyme and live in an area that has it, find an infectious disease dr., and go from there.

Good luck,

Gary

 

[SunnyDayz]

I was given Tegretol, which is supposed to calm the nerve endings. I was thinking that it wasn't working at all, until I decided to slowly stop, then I felt that the vibrations were much worse. I also have a problem at night, where apparently it's very active, not allowing me to go into deep sleep and causing me to be fatigued during the day. I take a low dose of Klonopin at night. I'm also looking for answers and getting none.