Tough Week: Test Results Inconclusive

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PossibleThree

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This has been a really tough week for me. I had the nct and emg test a week ago today. Althought the results were inconclusive of anything horrible, I feel that my symptoms have in some respects changed and perhaps gotten worse. The fasics have subsided somewhat. I was having multiple fasics in both legs continuously and also scattered throughout my body. Now only several twitches a minute in my lower torso. Now, most of the fasics are in the upper torso ( inside elbow, scalp, stomach, ear, cheeks, tongue etc.) And the fasics are less severe. I would say barely noticable in the upper body. Still no sign of weakness though. The very strange thing and that which is causing me most concern, is the bodywide vibration/tremor. I can feel this shaking/vibration thoughout my frame. Like standing on a vibrating cell phone. It can't really be seen persa but can be felt. It is a very strange feeling. It is similar to the weak feeling you get after the flu but with shaking/vibration. I'm in a bad state and probably not making alot of sense right now but wanted to know if others have had the same sensation. I am so tired of this really!!! :whistle:
 
I actually think you are improving. I have recovered from twitching that, in my case, was a result of severe anxiety (long story I won't go into it). I had severe twitching, popcorn like, electric zaps all the time, buzzing, vibration you name it I had it. I felt like I was connected to a powerpoint. I have now recovered from all of that but when my twitches started to lessen in intensity and frequency I still felt the vibration feeling. I had counselling for 18 months and I realised that the nervous system takes time to settle down and the pattern of improvement is 2 steps forward one step back.In my mind I looked at it from a positive point of view and I wasn't fearful of it. I accepted that, decided not to be afraid of it and I just let time pass and now I am reaping the rewards. I think the key is to not worry about it and accept it will take time to settle down. Regardless of the cause of your twitching I hope this helps you somewhat.
 
You went from strong twitches to weak twitches and even though that's a good sign, because it is new for you it is freaking you out. And, alas, there's the great dilemma with having BFS. Every time we start to get better or improve, we flip out because "progress" is easily mistaken for "worsening." So even though we should be excited about our changing symptoms, it is impossible to be excited because we're so amped up about every little change in our body.You've got nothing to worry about. I go through vibration phases all the time. The simple fact that your symptoms are moving around (and the area of your body you were worried about last week is suddenly much better) pretty much rules out you having anything nasty. You're just gonna have to ride out the new symptoms for a while and understand them for what they are.Look at it logically. You had lots of twitching in your legs, and now you have almost none. Shouldn't that be considered a good thing?Common sense can generally defeat BFS panic.
 
I agree with the others that you are actually getting better and should try to focus on this. It would be great if your symptoms continue to abate... think positive! I have had remissions in the past and have had flare ups later but I wonder whether the flare ups were partly fuelled by anxiety. Good luck - you'll be fine.RegardsSimon
 
I guess I should be grateful for the reduction in symptoms, atleast in my lower limbs. The problem is that I am still developing twitches elsewhere. It feels as if this "condition" is making its way through my body. It is different, strange and unfamiliar. So for me a static condition feels better even if the fasics are more frequent? That shouldn't make any sense but somehow it does to me. I'm certain that anxiety is playing a large role in my symptoms. I am doing my best to manage them with supplements (not sure how effective they are), prayer and meditation and .25 mg Klonopin twice daily. I continue to lift weights and ride bike. These activities give me comfort as it is a form of testing (legal?) that we all do. I can also see improvements in muscle tone and stamina. I do have the nasty habit of feeling my muscles and I know I shouldn't do that. For me I'm certain that if enough time goes by, or as time goes by, I can be further reassured that these symptoms are a result of bfs and nothing more. I do have an extensive vitamin regiment if anyone would be interested? There may also be an association between ones gut and these symptoms. I also suffer from GERD and IBS. These are in better check now than they have been in the recent past. Apart from a near vegetarian diet, I have also been taking papaya enzyme with meals and increased my fluid intake(water) to 10 glasses daily.Thanks for the comments and more are certainly welcome......
 
Thanks Mariaj for your very sage words - I think your suggestion is probably giong to be the most useful advice I have received in a good long while!Simon
 
My buzzing and twitching significantly diminished with the help of Ativan and Paxil. This leads me to believe that it was most likely anxiety produced. After going off the meds when I became pregnant, the symptoms got worse again. I just recently went back on the meds with an improvement noted. Throughout it all, I have had vibrating at night. This is the only time I get this sensation, and it is my whole body. A co-worker also reports that she vibrates at night, but does not have fasciculations ever!
 

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