Tongue Twitching/Tingling Question

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InvisibleItches

Well-known member
Hey All, Happy Thanksgiving!!! So, in looking at my tongue the past 4 weeks I've noticed something scary that I hope people could shed light on and evaluate my risk. Whenever I stick my tongue out, even just slightly, I see a constant movement. It never rests still. Like a rapid heartbeat. I don't always see the twitches, although I sometimes do. Couple this with my constant tingle, weird mouth stuff, trouble swallowing, and recent jaw and mouth stuff, and YIKES. Even as I'm here with family during this Holiday, I had to grab my phone to ask this question. It is a constant movement in my tongue.......and I've read this is a BAD sign :( :( :( -Ryan
 
Ryan, in persons like you (and me), in constant fear, the tongue NEVER stops, believe me, and it is NORMAL in your condition and does not involve any bad signs except the sign that you definitely have to think about good planned antianxiety course. it is not twitches, it is just flitter. Even if you have tongue twitches, it is nothing bad, look on Matt, he has them for year now and still is alive. You should know already that 'weird mouth stuff' is most probably GERD/globus, your recent jawlock was a subdislocation, very common in people who often open the mouth and try to see their guts, your tongue is not paralysed, you still can eat, drink etc., and I suppose people do not ask you: "what you say? sorry? you are so mumbling..."
 
Thanks Gracely, you are right, I should know enough now to know that my jaw pain, throat pain is nothing to lose sleep over. I should know and feel pretty confident in my knowledge that my constant tongue twitches and tingles -- more for me the tingles than twitches in my tongue -- are right in line with BFS. Yet, I don't feel that much anxiety right now. Or, especially 4 weeks ago, and yet, whenever I stick out my tongue, even a little, it's JUMPING all over the place. Even when I leave it resting in my mouth, and slightly open my mouth to.see my tongue, I see it jumping and moving all over.......that is what I'm really worried about!!
 
but those jumps are absolutely normal. tongue is very unstable muscle and it react even on slightest command.well, as for feeling or not feeling anxiety - we often can not judge that, especially after being long in it. for me the issue is not that you are constantly in panick - noone can for long, we are getting easier anyway... but your concern should be that you still have a panick trigger on health anxiety - and when your ALS fears are exhausted (therer is always a point wherer fears become evidently vane even for the deepest feare, you start immediately with HIV etc.). it is a mechanism already (probably it was in you for a long time before that ALS *beep* started). So I encourage you to go ahead ald seek a help and find a person with whom you can look on those fears closely.believe me it is not like a flu. you would not be granted spontaneous recovery. Therer is no spontaneous recovery from anxiety, if it lasts for long and acts like yours. it needs management and efforts.Some of your basic things seem to be crushed. You need to resotre it. That's all.
 
Thanks Gracely,I always appreciate your knowledge and kindness. I know I need help for anxiety,that is clear and I plan on taking action! Shesh, I hope I can make it through this!
 
I am managing it in my quite an age - and you can do it, believe me.I have had it for 35 years and it is still manageable! you can be very successive.Good thing is that people with anxiety or OCD are usually full of force and efforts and sometimes are well motivated... so they are mostly winners in the life - when not obsessed.
 
That is awesome Gracely, Im hopeful that I'll be there. I don't know why I can't handle the tongue stuff. It just gets to me all day long. Like right now: My tongue feels like it is stuck in my throat. It scares me to death
 
WEll to be honest my own soft palate is feeling like numb for a week already, so what? it is NOT a real numbness in my case, and it does not afect my operations (eating, voice, nasal breath etc.) so I am rather prone to treat that as another anxiety issue (I had it a lot for two weeks and now I got a consequences I believe). I know it also might be a consequence of extreme muscle knot I have in my neck (probably bad circulation here). I have unpleaseant feeling in left feet on the top - maybe muscular but also maybe a bone issue. I definitely have low Ca so I am crampy.But I am still functioning and alive. I remember that rule - not feeling but failing. Unless I do not fail - I mean I am rather Ok. Your goal is to help ypurself to acquire that type of attitide othervise virtually ANY signal from your body would be misinterpreted by your mind.I know that my body CAN misinterpret signals. So I am taking that in consideration.
 
I will repeat what I mentioned many times:Tongue fasciculations ARE NEVER being evaluated while your tongue is stuck out. Tongue is not a muscle, its actualy several muscles intelacing. For the majority of people its hard to keep the tongue still even when resting in the mouth.Open the mouth and do not move your tongue in any way, just leave at the floor of your month. This is how neurologists look for fasciculations. And even though there are normal movements so to spot fasciculations, one needs to know that he is looking for short, brief and often repetitive twitches of very small areas.
 
TwitchyMD, Thanks for the information! That makes sense, that when the tongue is stuck out, even in people who don't suffer from anxiety, it would be hard to keep still. However, I also do that test where I just slightly open my mouth and leave my tongue rested in my mouth, and even in there, like that, I see twitches, jumps and vibrations. Also, I have this weird phenomenon where my tongue creates like little grapepie, its really unusual. My tongue will just be resting and then little bubble will forum on or under my tongue like I'm a baby. It scares me. Ahhhh
 
and guys, I'm sure and I'm sorry if I've overstayed my welcoem at this point. Or if some VETERANS are like, "why can't this kid understand that he is ok!" But, I don't. I can't understand. My throat has been twitching. It feels soft, sore. My tongue vibrates all day, or, worse, will create some kind of small saliva bubble, like a twitch is happening on the tongue or under it and a bubble is produced. It often feels as if my tongue is stuck in the back of my throat. I stumbled over my words all holiday weekend, embarassed to talk in front of my own loving family. I bit my tongue once during Thanksgiving dinner. I'm having trouble swallowing. I'm VERY VERY SCARED. :oops: Then, I re-visited the 'Why You Don't Have ALS part 2" thread...and it provided some relief. Like, and I'm summarizing here, "Twitches are happening, in ALS, after muscles have wasted away, so at that point, one would have noticed loss of use in muscles, etc. etc." So, basically, twitching is never first, never before one would have already known the worse. And I got to thinking, maybe I am OK! I've only ever had twitching, hot spots, and some soreness. But then I became unsure again. The mouth stuff isn't really defined in that great thread. That all seems different. All of those symptoms seem much more severe. Again, like right now, my tongue....It seems as if it is dying in my mouth. Stuck in my throat. I'm having trouble speaking with ease. And it leaves me again, at a loss. Scared when perhaps I shouldn't be. But, the more I think about it, the more scared I become. Why is this stuff happening to me. I'm losing it. I was also wondering how to use this Chat Room. I hope I can make it to XMAS. I'd love that.-RyanAnd please, Veterans, I need help. Although, You've all done more than I could have ever expected. Helped me through some very scary times. The beginning of my journey through all of this about 1 1/2 years ago, you all saved my life. If my life continues as I hope it will (which will see me become pretty successful) I plan on personally paying all of you great people back, in one way or another. But this stuff, this mouth stuff, I don't know. And, I also understand if you are all through with me....Like I said. I hope you aren't and I apologize for how often I've posted over the past Year and 1/2. :crying:
 
What exactly do you want any of us to say that we haven't already said? Have you even tried the Anxiety Centre? Have you even looked into some sort of anxiety medicine? I don't know how many times I can say "BFS symptoms always go crazy in the winter" and "Look into anxiety, it will solve most of your problems" before it starts to sink in.I don't say this to be rude, I am just trying to get you to look at this from a different perspective. Sometimes a change in perspective is all you need to kick you in the butt and get yourself to start going down a different mental path. Because the mental path you are currently going down is not a helpful one.
 
Since you obviously need or want the attention of the "veterans" why don't you just tell us which ones and let everyone else off the hook?
 
Mario and Volfan,Sorry I didn't mean to word it like that, I REGARD everyone on here posting KNOWLEDGE as "veterans" that is just part of my vernacular. I didn't mean to offend anyone like that. :mad: And Mario, I did look into the anxiety center, it has amazing stuff and it seems a lot of my "stuff" falls into that category. I take Celexa, but I'm not a huge fan of it. Again, I apologize. I do appreciate the responses though, THank you!-Ryan M
 
Ryan, it is not enough to look at tht Anxiety Center, you MUST practice in what they suggest (or find another antianxiety practices because not everybody are happy with CBT and not everybody can practice it being deep in anxiety).Anxiety makes us self-dependent in terms of adrenaline (it is powerful energizer), it has also dophamine hooks (a huge relief which we can feel for a few days after our fears relieved), so anxious person shoud consier herself/himself as a bit of endogenous narco or alcoholic (behavioural petterns of looking for dose of endorphines/dopahmine/wahtever are very similar).So you need also a personal help and professional one. Your mind, however bad you are scared, just would not let you go out on yourself, well, because you supply your receptors with finest delicious neuromediators!!!There are people who did not go into that chemical dependency easily, and theer are people who do, unfortunately. it depends on initial brain chemisrty and also on many other conditions. But to decide to go out of vitious circle, one must be really really really put down (as I was in my 37th year, exhausting all other methods, including ignoring and drilling), and it is God's blessing if the way out is not seen as suicide. Look how many people (mostly celebrities) die at the rim of forties. Guess why? Because they are anxious up to the top and because of substances abuse, but they abuse the substances in order to cope with extreme anxiety and depression. I personally do not wish it would be anybody's way. And well, those who survive their forties (like Hugh Laurie, as a fresh example) - they apply to a personal help of psychologist and this is a best proof of how that help is useful.What else I can tell you? Say that fine grapepie of saliva ARE NOT A DEATH SIGN? Remeber you how you were sure of death sentence because you pinky toe was not moving? Point that anxious people often have GERD and pharingospasms even to the point of losing voice (have you ever heard about people who just can not speak in front of audience - do you think they all have transient bulbar paralysis? Nope, they just have pharingospasms like you) Say that it is ridiculous when a young strong guy comes from the WORKOUT and searches if there are signs of paralysis in his nice strong body? What else I can do personally?Celexia is not the only drug and even it might be not the best one in your condition. And if the drug is not working, you must address it to the doctor and go and search and fight for yourself and defend yourself. We can not reassure you. By playing that game we just support your endorphine dependancy, we give you a bit of nice chemical shot, but your brain needs more and more to cope with increasing anxiety, so all that is a vane.You only can decide and break a circle.Again, it is not a flu. There would not be a day of spontaneous cure of anxiety. You would never be the same as you were 2-3 years ago.But you might be different. More alive.
 
How big are your tongue twitches? Is it a small, fine, rapid twitch of an isolated area on the tongue about 1-3mm in size? Or are the twitches more gross, involving larger parts of your tongue?
 
Ryan I mean if you have a flu, you might not do anything - usually flu is spontaneously recovering disease. You might experience bad days - heavy running nose, lack of sleep, severe coughing, pains in throat, headache - but you always know that in one week you'd be better. But in case of obvious anxiety disorder you should not expect that you spontaneously would be free of fears or anxiety. Well you can withstand for 3-4 weeks, 2 month etc. but therer is no equilibrium inside - small thing like interrupted sleep or bad food or just something seemingly unrealted throws you back in suffering. And for that condition there is no spontaneous healing and you need a program, and efforts , a lot of control etc.Fortuantely often people with anxienty disorder are quite control freaks and that is what helps them greatly in healing.
 
Gracely,Thanks again, as always, you are very very kind and have helped me immensely along this journey. I've been trying to practice staying away from the forum for at least a few days, and trying to cope on my own...without outside assurance.Days like today it was too difficult. All day, when my tongue is at rest, it is resting on either the left or right side of my bottom teeth. Not fully, but partially, it can always be felt. Also, and I know this is a major anxiety symptom, so I'm not as worried about this, but all day it has felt like there is a lump in my throat...my fear is that, other than anxiety, it is my tongue just chilling in my throat. Lastly, this caused perceived troubles in eating today. :/Anyone have any idea what is going on with my tongue? Or at least, why all of a sudden it is felt on top of my lower teeth!? It was a horrible horrible day. AHHH :mad: ,Ryan
 
External person - a specialists to talk about essential fears and thir role in your life - is absolutely necessary. Believe me I was trying to cope by myself for 30 years... and I was a child and a teenager, so I had more tools to be distracted and distraction never helps. You must not run from your fears but investigate them. Why they happen what in fact they are about, etc. etc. It is a Captain Obvious thing, but we anxious people finally have to fight :)))As for your lump in the throat, therer is nothing more common for anxiety thatn various kinds of pharingospastic issues received as lums, hair, sharp objexts in the throat, or as pain similar to inflammatory, or certain regions might be painful even if touching from outside. Sensory issues are also frequent - numbness, cold patches on the hard or soft palate, on the tongue etc.Because you are overconcentrated on your tongue, you perceive every slightest difference as a big one. and even when you are relaxed anf your tongue naturallu might go over your teeth a bit, yu think - I NEVER HAD THAT BEFORE!!!!hahaha, surely you had :))) while I am writing, I also had my tonge over my teeth just because it happens normally.Do not try to distract yourself. Ask for profi help. It works. you can not pull yourself up by your hair - same is fr fears and anxiety, external help is CRUCIAL and must be professional and friendly. But not as a reassurance which we only can provide but it must be help in investigating your fears and anxiety, that is the difference.
 

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