nameyisyBoby
Well-known member
Dave - same story here...I am fighting to keep from falling apart emotionally. This should be of some comfort:
From BFS in a Nutshell
“Usually the patients that we see who have tongue fasciculations have the typical signs and symptoms of ALS that has significantly progressed (prominent weakness and muscle wasting). The tongue fasciculations are NOT the presenting symptom unless they are accompanied by markedly slurred or even absent speech, difficulty moving the tongue due to atrophy and weakness, and profound difficulty swallowing. These patients are quite sick and many of them have had dramatic weight loss due to the inability to swallow.” So you get tongue twitches? No big deal. Did you read what he said? ...”tongue fasciculations are NOT the presenting symptom unless they are accompanied by markedly slurred or even absent speech, difficulty moving the tongue due to atrophy and weakness, and profound difficulty swallowing.” Do you have any of those symptoms along with your tongue twitching? No. Not that I’ve read from any of you......."
Nick
From BFS in a Nutshell
“Usually the patients that we see who have tongue fasciculations have the typical signs and symptoms of ALS that has significantly progressed (prominent weakness and muscle wasting). The tongue fasciculations are NOT the presenting symptom unless they are accompanied by markedly slurred or even absent speech, difficulty moving the tongue due to atrophy and weakness, and profound difficulty swallowing. These patients are quite sick and many of them have had dramatic weight loss due to the inability to swallow.” So you get tongue twitches? No big deal. Did you read what he said? ...”tongue fasciculations are NOT the presenting symptom unless they are accompanied by markedly slurred or even absent speech, difficulty moving the tongue due to atrophy and weakness, and profound difficulty swallowing.” Do you have any of those symptoms along with your tongue twitching? No. Not that I’ve read from any of you......."
Nick