Tongue Fasciculation and ALS

[starGalaxyGazer]

Hi
I wonder what is your knowledge about tongue fasciculation as a symphtom of ALS. I know that are different opinions about that.
One says that tongue twiching is a bad sign (MND proppably) and other that it could be also benign.

And how do tongue fasciculations looks like? I asked my neuro about that and he told me that toungue fasciculations ook like worms would crawl inside.
When I am looking at my toungue it seems to move a little - I hardly can keep my toungue not moving (it looks like my tongue tremble a little). Is that fascics? I have NEVER feel toungue twiching.

What do you think?
Marcin

 

[TheTrex]

Pole,
I went through this a few months ago, I thought I felt a twitch in my tongue and I of course freaked out, fortunately I work with a physician and we do emgs on tuesdays, he looked at my tongue to me it was twitching, although looking back it was quivering probably because I had stuck it out to examine it about 50 million times that day. He laughed and said he saw no fascics, he said "do you think it is twitching" of course I said yes, so he said "would you like me to stick a needle in it" of course I said yes. It was completely silent, no pop, no crackle no nothing, he said that is an excellent sign, there is nothing going on here. I was soooooooo happy.

Tongue twitches can go with MND and they can be benign just like any twitch, and sometimes when we twitch everywhere we actually think all the twitches are real, but some are psychosomatic, you see we are so used to twitching every time something in our bodies move we think it is a twitch.

Kerri

 

[starGalaxyGazer]

Thanks Kerri.
Are you here all the time?

I hope you are right that tongue twiching also may be benign, but when I did my EMG, the neuro told me to show the tongue and looked at my tongue very precisely. So maybe the tongue fascics are really important????

Marcin