Tongue Buzzing and Twitching - Fearful Reaction

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InvisibleItches

Well-known member
Hey guys. I've taken some massive steps forward, however, just being back on this site and reading what may cause als etc. etc. really really scares me and makes me again think I have it.So, the past 2 days my tongue has been buzzing and popping a few times per hour. I'm freaking out. I'm also getting very small, fine twitches in my tongue and again, I'm taking 2 steps back after some great progress forward. I'm just having a horrible time in believing that this isn't ***. I don't know why. It is just so weird and I want to accept my tongue EMG and all of the evidence from smart and kind people on this board but again I'm having a huge huge problem. And again, whenever I think I've made progress, I fall back. The example of reading that post about als and what may cause it for example just scares me more than anything. It makes me think, well, maybe that is happening to me. Maybe that cause is happening to me right now.
 
Hi there....don't read sites about the nasty ok..please...I have banned myself from them....And yes you sound like me it's one step forward and half a step back with bfs I get used to one thing and another pops up....I just had tongue twitches last week, of course I freaked out too read my post...then they stopped now my feet are going bonkers...Why wouldn't your tongue twitch? It's a muscle just like all the others...and if you focus on it of course it's going to twitch more your anxious....did you know tongue twitching is very common in anxiety sufferers....if you want to google, then google anxiety cos that's what's going on my friend.
 
I too have been having tounge twitches like crazy. Seems like a hotspot. I admit I don't like it and it set my anxiety off but it's not ALS. The tounge is a muscle therefore it can twitch. I even went back into some of the archives and read some posts on tounge twitches. If you have a chance, there is a member named May and she had constant tounge twitches for 2 months straight. I know its hard but try not to stress. It's more of your mind playing tricks with you than anything else.
 
Well, there is a very good ALS website from the Berlin charite, sorry you cannot read it . But it sais that in ALS, there are no fasciculations in the tongue, it's fibrillations. There is a video of this on the website, and I saw it. The tongue behaves like a dying snake,making very weird relatively slow movements. No fast twitches or fine fasciculations though. That's actually the reason why I was never especially worried about my tongue twitches. And people don't feel it ( which is really hard to believe, but seems to be very common for tongue fibrillations)
 
Just little correction. Tongue fasciculations are not called fibrillations, fibrillations occur in any denervated muscle and only in tongue are visible to naked eye as there is no additional tissue, just the membrane. Fasciculations of tongue are what a lot of us reported (BTW, mine occured just 1 year ago - see my scared posts), fibrillations are different, as perfectly shown on that video. I think you can send a link so people do not freak out as it shows real bulbar involvement. After seeing this, you will not be scared of twitch here and twitch there.You are fine...year ago I was sure I had bulbar ALS and I am still here, talking and eating fine :)
 
Well, here on charity they call it fibrillations not fasciculations, but the fact that this video is showing: what we are experiencing is nothing similar to what the tongue of these people is doing. But actually I don't wan't to send the link though. I already scared people with the other thread I wish I had never posted so I do not want to link or write anything related to ALS anymore, even if it's meant to be reassuring. After all, this is a BFS board and not an ALS board....Just remenber: these ALS tongues are NOT TWITCHING. They are doing very weird stuff,but not twitching as it is known on this board. As you know the link, maybe ask some of the oldtimers if they think it would help anyone here if it was posted.
 
Chrisi, these are really fibrillations as they are continous. Fasciculations of the tongue are bit different, they are random but with ALS, they do not stop once they start. The video shows fibrillating tongue with visible wasting.
 
Ah OK, now I know what you mean. This looks weird, doesn't it? I saw it in the beginning of my bfs ,when I was googling like mad about ALS, and it really was obviously different from what I had. But I just figured out that medical information can be reassuring for the one, and scaring to death for other people, so I don't know if it would be a good idea to post this link.
 
Yes, I too posted here few times something that was positive if understood correctly but people got scared and just did not want to listen. So its better to do not post anything like this, especially when it comes to studys, articles etc.
 
Yes, sometimes that's better. Well, i studied science so I am just used to looking for facts /studies and interpreting them in an objective way. And I know there will always be excetions to every rule, this does not scare me too much. But other people might get scared from this.
 

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